Well, I am trying to write a blog entry every 4 or 5 days now. I know that is way down from every other day or every day or multiple times a day, but my life went from busy to boring, and I don’t want to hit you guys with too my boring. So, unless it’s something major, it will be every 4 or 5 days just so you guys know I am still alive. BTW, if I do die, Teresa will post a blog post here to share the news.
That being said… I am nowhere near dying yet. On Monday I had a CBC and lo and behold my Hemoglobin went up a full point from the week before. That means the chemo appears to be working for my Hemoglobin. My platelets not so much. They went from a high of 220 to 123, that was from 150 the week before. So, my Hemoglobin is doing GREAT, but my platelets seemed to not get the memo to go up.
2 more moths of chemo and then I have another bone marrow biopsy. Yes, this will be what I believe I counted to be number nineteen (but I could be off). It’s all good. Mayo knocks me out so I don’t feel the procedure and it’s only a dull ache for the ride home. The biopsies never really HURT, just a little discomfort. So, it’ll be interesting to get the results of this biopsy. It determines if I am back in remission or stuck having chemo for the rest of my life. Dr. Alkhateeb says he doesn’t know why I am still alive, and is guessing at what to do for me. (No, he didn’t say either of those phrases, but that was the jist of what he said).
I see Dr. Wehbe every month that I have chemo. I see Dr. Alkhateeb pretty much every month too. Dr. Wehbe is technically the doctor who is prescribing the chemo, since I am getting the chemo here is Iowa and Dr. Alkhateeb can’t write a prescription for chemo out of state. it is all good though. Alkhateeb has spoken to Wehbe. Everyone is on the same page.
I am really close to being a statistical anomaly. On April 1st, it will be my 5 year anniversary of the AML diagnoses. The powers that be in the blood cancer field stop tracking survivors after 5 years cuz there are so few percentagewise. So, screw the percentage, I am still alive and will be after the 5 year mark.
Oh, by the way, there might not be a Still Not Dead Yet party this August. It all depends on if I am still on chemo. Ya see, Dr. Alkhateeb said I might be on chemo for the rest of my life.. SUCKAGE. This coming biopsy is all important in regards to that. If the biopsy shows all the chromosomes fixed, then there will be a party, if they are still FUBAR, then there probably won’t. So good thoughts and prayers are appreciated.
I’m still waking up between 2am and 4am not matter what time I go to bed. My shrink was not really much help in this matter. He just suggested trying what we have already tried. But he did say he would prescribe more than the max dose if the situation doesn’t get fixed. Hit me with the mega dose of Restoril and see if I can sleep. Almost all my life I have had problems with insomnia, but that has always been trouble falling asleep. This is weird insomnia (still insomnia no matter which end of sleep you don’t get), waking up early and it kind of sucks.
I am still drooling too. No medical person has been able to tell me why or how to stop it. The odd thing is, it is stealth drool, I don’t always feel it until it hits my neck and/or shirt. I change shirts often cuz a wet collar feels gross.
We go back to Mayo next Friday, Just for a check up. Our scheduler actually listened this time and doesn’t have us needing to be there until 1pn and we are done by 4pm. WOOT. Finally they are getting the idea that we come from 4 hours away and don’t want to get up at 3 in the morning intentionally to get to Mayo,. for a blood tests. (we have done that before). Then I get a month off from seeing Dr. Alkhateeb. In 2 months is my bone marrow biopsy.
I am still playing Skyrim: Special Edition. My latest character is an Orc who wields a sword and shield. She is level 43 now, which makes her the highest level character I have played in either original Skyrim or Special Edition. Her Speech is at 97, almost to Legendary (100), it is just taking a long while to get her to skill up now. Her Pickpocket is at 90 I think. Whereas her One handed skill is only in its 70s, and her Block skill (shield blocking) I think just hit 40. Heh. Anyhow, I am having oodles of fun with this character. More fun than I have had with any other character that I can think of.
I think that is all, this blog entry is much longer than I expected it to be. But I wanted to share most everything. So, you get a longer blog post than I have been doing. Well, it is all good.