More medical stuff mainly

Well, 3 more days of chemo behind me.  Nothing interesting happened the entire time.   I went, got the chemo, went home and napped.  YAY.  At least today I got to chat with a couple people on Facebook, yes I take my laptop with me to chemo… gotta have something to do while sitting there.


Next Medical stuff is May 20 and 21.  On the 20th I have to get labs for the video visit on the 21st.  Since its during my off week, so my blood numbers will be down some.  My hemoglobin will drop a point and my platelets will drop 100 or so.  But it’ll be alright cuz in 2 weeks it’ll be back up.  I wonder if I didn’t get chemo in 4 weeks would it still drop in 6 and climb back up in 8….  a question that will probably never be answered.


And then on May 28 I am going to finally have my bone marrow biopsy that I was supposed to have on April 10th.  That is if I don’t ask to move it again or they don’t ask to move it again because of the Corona Virus.  I am still very leery about going to Mayo Clinic aka Corona Virus central still.  I think maybe I should talk to Teresa or my shrink or Dr. Alkhateeb about this problem.  I’ll start with Teresa I think.

The Bone Marrow Biopsy will show if I am in remission again, which would be nice to know.  But any remission would only be temporary.  But it would be a really good temporary.  That would mean no chemo for a while.  It would still mean blood tests at least once a month.  But it would mean a lot less fatigue.  And a brief semblance of normalcy.

However, is a possible chance for knowing I am in remission worth walking into a serious chance of getting a case of Corona Virus.  I really don’t know.


Any way it goes, I have chemo again on June 1st thru 3rd.  And by the 3rd or so I should have the results of the bone marrow biopsy, assuming I get it on May 28th.  Then the chemo on June 29th will start the 5 day chemo cycle, assuming Dr. Alkhateeb agrees with Dr. Wehbe.  That will suck.  I don’t like 3 day chemo cycle, I’m sure I will hate 5 day cycle.  But it might just throw me into remission if I am not already there.  So if it is decided to move me to 5 day cycles, I will dutifully go on 5 day cycle.


In the mean time I am so fatigued it’s ridiculous.  I am very tired all the time.  This chemo is slowly (OK, not so slowly) eating away what life I am trying to have.  Heh, I shouldn’t complain, at least I still have my hair.  But seriously I am sleeping 14 to 16 hours a day again and that is rough.  I wake up to eat then go back to sleep.  This goes on all day long, then I am awake for a little while at night (like now) and then go back to sleep at regular sleeping time.  Even during the time I am awake I am way tired.  I had hoped it would have gotten better as I got used to the chemo but no, I’m all messed up.


No Dungeons and Dragons last night.  No Dungeons and Dragons this Friday.  Looking forward to playing on Sunday night in Jason’s Dungeon and Dragons Eberron game.  I had a real great time last week, I really enjoyed myself.  I am sure that the game will be just as great next week and the next week and the next week.  It’s all good.  Jason’s game has been going on since September so I don’t think its going anywhere but on and on.


Did you know that Minute Maid Lemonade in a carton is gross compared to Minute Maid Lemonade in a can?   WalMart didn’t have any cans last week so Teresa got me to carton stuff and it just tastes nasty.  I may end up pouring out more of this nasty stuff than actually drink it.  Luckily, Teresa will understand.


Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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