Another beautiful day here in Adel. August 4th, 2020 is going down as another great day to be living here in Central Iowa. The sun is shining, but it’s not hot. I think the high today was 79, so a little warmer than yesterday. But still quite nice for August, tomorrow promises to be more of the same.
Day 2 of chemo went well enough once they got the orders signed, that took a half hour of being hooked up to saline. But that is not to say the nurses didn’t do their job, they got me and got on me hooked up with the IV and had me there early, it was just the nurse practitioner who was slow on the uptake. Anyhow, once orders got signed, I got my Zofran and then my chemo (still forget the name of it, sorry). 2 1/2 hours after I arrived I got to leave. 1 more day of chemo to go for this run.
I’m still having problems concentrating with the lower hemoglobin, if it keeps going down this will just keep getting worse. Not looking forward to this being a permanent thing, I really don’t want to go back to getting blood infusions.
The other side of this is I am horribly tired all the time. Worse fatigue than just the chemo fatigue. But I am having problems napping appropriately now. I lay here in bed and just can’t shut down my rapidly running mind which may or may not be related to everything else.
My 50th Birthday is the day after the day after tomorrow. August 6th, 1970 was the day that I came into the world. Sorry world, I wouldn’t go back and change anything. Yeah, I have had a rough life, health wise. But I have made lifelong friends, and I have had a lot of good times. I married the most wonderful woman in the world, and I have been with her for 28 years (married 27). See, I am a super lucky guy. Yeah, I have terminal cancer, but I keep beating the odds and surviving. I have no illusions that this will go on for a lot of years. To be honest, I just want to live 3 more years. Totally blow the mind of all the doctors at Mayo. See, I already have them confused about me being alive after 2 years, if I can live 5 years post transplant it will surely blow their collective minds. And it will give me a chance to take Teresa on our 30th anniversary trip. That is something to live for. Anything for my love.
I am not capable of running D&D tonight (sorry jubal). I won’t be capable of running D&D on Thursday night either. I hope to be able to play D&D in Jason’s Eberron game on Sunday, but I am not promising anything at this point.
Dr. Eastin (my shrink, video appointment) 8/18 11:15am
Labs/Dr. Wehbe Clive office 8/20 8:40am
Dr. Matta (my dentist) 8/20 11:00am
Chemo Clive Office 8/31-9/2 Appointments to be made for times
That’s my medical schedule for this month, unless Dr. Alkhateeb calls us up to Mayo sooner, which I doubt he will. Not a bad month medical appointment wise. I may try to reschedule Dr. Matta, because I really don’t like to do multiple appointments on the same day. And because I am dying and don’t really give a crap about my teeth as long as the don’t hurt. So, I can push her appointment off with zero guilt.
The real test if my system is failing will be the labs on August 20th. I could have had a baddish virus which wreaked havoc on my system and it is gonna take a while to recover (that is what I hope). OR the chemo has stopped working and my body is reverting back to making crap instead of hemoglobin and platelets. (which is a possibility). The labs on August 20th SHOULD answer the question as to which it is. Hopefully my numbers will be on the upswing and it was just a silly virus. Even though the blood cultures test came back clean. BAH, I don’t want to think about this right now.
I’m gonna end this now. I don’t know if that was all I wanted to share, but it seems like I shared a lot. So, that is it. I’ll go grab a video.