Heh, it’s struggling to get up to 80degrees on this Tuesday, August 18th, 2020. It truly is a beautiful day outside. Wish I had more of a reason to go outside than to get the mail, buy hey, I did make it outside for a few minutes and it was 76degrees and wonderful.
My Shrink, Dr. Eastin played hooky from work today. So on the day I really need to talk to him, he isn’t there for me. Typically my luck. At least I got a better timed appointment for next week, when I will know for sure about things.
I’m going to have to cancel my Plantar Fasciitis appointment. It’s not like they can do the minor surgery when I got no platelets, and minimal hemoglobin. Sucks, but my knees hurt long before my heel does anyway. So, I won’t be getting my heel fixed.
My mom and brother are going to try to come to visit over Labor Day weekend. It will be good to see them. I miss them both very much and I was thinking I wouldn’t get to see them for quite a while. Jim offered to get me a macho combo burrito from Del Taco, but 9 hours in the car will kill said burrito, so I said No. But it was sure a nice thought.
I see Dr. Wehbe on Thursday, I think there is a good chance that I will be getting platelets Thursday or Friday at the rate they were dropping. If not this week, next week for sure. My hemoglobin is dropping, but not as fast as my platelets. Blood infusion is probably two or three weeks away.
I managed to finally get some sleep last night/today. I slept for 10pm to 4am then took 2 melatonin and fell back asleep for a change. Slept for 4:30 til 7am when my Alexa goes off to remind me to take my meds. Took my meds, went back to sleep by 7:30 tried to wake up at 11am. Failed. Went back to sleep about 11:15 and woke up at 12:30pm. YAY for sleep. My body and mind need some good sleep.
Tomorrow morning is my bone marrow biopsy. Ho Hum, another hole in my hip bone. They ask me if I have any questions about the procedure, I should answer now, No, do you? lol. I have had so many of these things that it’s almost amazing that I still have hipbone left. More holes don’t matter I guess. It’s the only way to find out if I am actively dying or still passively dying. We are on the hunt for Blasts. Little malformed immature blood cells which indicate that my MDS has turned back into AML. But not normal AML, chemo resistant AML. A death sentence. Still don’t have any idea how long after discovery of Blasts is someone expected to live. I can’t think it is very long.
Well, without having went to Mayo, I would have been dead a couple years ago. So, that was a good choice. Gave me a few more years with Teresa. Now I am in total disagreement with Dr. Alkhateeb. I think he is wrong. Thus I am going with Dr. Wehbe’s suggestion to go ahead with the bone marrow biopsy. Dr. Wehbe kept me alive a lot longer than Dr. Alkhateeb has. I trust Dr. Wehbe more than I trust Dr. Alkhateeb. I have often felt that Dr. Alkhateeb is holding something back from me. Oh well, will get the biopsy thru Dr. Wehbe, then if the news is bad take it back to Dr. Alkhateeb. Such is the way it shall go.