It is definitely not Leukemia

Wednesday, August 26, 2020, is not quite as hot as the few days prior to it. It’s only 95 on the thermometer (feels like 98), but I am still glad I don’t have to go out this afternoon. That is right, I have today off. I’m tired of medical stuff, I needed a break in the middle.

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Dr. Alkhateeb (from Mayo for anyone who doesn’t know) wrote to us. He is of the test and see plan. He wants to check my B12 levels, cuz my GI track is “wonky”. He wants to wait for a chromosomal study. And he is going to be out of town next week. So Dr. Wehbe (the local hematologist/oncologist) will have to do the ground work and of course, keep me alive. In other words, my graft may not have failed as other lesser things might cause the same reaction. So we are gonna play detective. I am cool with that. I think Dr. Alkhateeb just doesn’t want to think of the graft failing on its own.

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The great news is that it is definitely not Leukemia.

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We are holding off on the chemo. WOOT. At least until with have the cause figured out. So for a while I won’t have to go and waist 2 hrs of 3 day every 4 weeks for chemo. This makes me happy too. It’s just a temporary happiness cuz I will be back on chemo in a few months I am sure.

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I still feel like crap though, it’s been this way since about 4 hours after the blood infusions last Friday. Just a general feeling of not well. I got a CBC yesterday from Adel MercyOne and all my numbers are right where they are supposed to be at this time. So, it’s not that. I sort of ache all over. And I am super fatigued. It’s probably all psychosomatic, ya know, in my head.

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Speaking of in my head, I have a video appointment with Dr. Eastin tomorrow afternoon, assuming he doesn’t cancel again. I still got a lot to dump on him. Should be fun.

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In the early morning I have labs and an appointment with Dr. Wehbe. Which should also be fun. He will tell us the final results of the bone marrow biopsy. And he should have the lab run some funky tests on me. I won’t be getting blood this week (I don’t think) and my platelets are off doing weird things, so I don’t think I’ll need those either. It’s all good, I like visiting with Dr. Wehbe, he’s a real nice guy.

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Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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