No more passive dying for me

It was cold and wet all day today. 56 degree high and a lot of rain. Made a miserable day even a little more miserable.

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Today I found out what has truly happened to my bone marrow… it’ empty. I guess the silver lining is that all those tests came back good, so I am a perfectly healthy shell now.

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Dr. Wehbe officially bower out of anything more than palliative care, cuz my problems are way out of his training. So, all he is going to do is give me blood and platelets when I need them. Otherwise, he will try to answer questions but can’t promise anything. I respect this man and if says he can’t do anything for a patient, I know it hurts him on the inside.

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Dr. Alkhateeb is excused from actively treating me cuz he has rounds duty at the hospital. Best he can do is take care of the ones who are going to survive,

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To sum this up. I am actively dying now. Dr. Wehbe will do what he can to keep me comfortable here. Dr. Alkhateeb isn’t available until after September 28th. And until someone can do something for me, I am just going to keep feeling miserable.

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I did manage to get over to the Waukee Iowa DMV and get my new driver’s license. Small miracles do happen.

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I wish I had energy to do anything, but according to Dr. Wehbe, I have a thick goo where my bone marrow should be. And it burns a lot of energy to just make it day by day.

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Tomorrow I get 2 units of blood. Last 2 units didn’t make me feel better after a few hours. Here is to hoping these units hit me better and I feel better like I a supposed to.

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Still don’t have an estimate on how much longer I have to live. All I do know is I went from passively dying to actively dying in less than a month. THAT SUCKS.

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Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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