Days Go By

It’s Sunday, September 13th, 2020, the day appears to be a typical early fall day. Temp in the 79 range, no real humidity, nothing horrible to look forward to in the forecast either. So I mark this as a good day.

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Teresa left a message with my shrink last week and he never responded. I find that rather disturbing. Her message was a “Help, my husband is in distress” and he didn’t take it serious enough to respond. He is going to get a word or two about this Thursday afternoon when we have out appointment.

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Had a blood test last Thursday, and needed a bit of blood. So Friday was a day spent in the infusion center getting 2 bags of blood. Dr. Wehbe’s idea of a bit of blood I guess. Also, the start of his palliative care. Which means he will give me blood and or platelets as needed while I am under his watch. I couldn’t ask for a better guy to take care of me like that.

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I go back in for a blood test next Thursday, but shouldn’t need blood or platelets. I haven’t needed platelets yet this time. And with getting 2 units of blood last Friday, I should be good to go.

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I want to go to Colorado before Jim and mom leave. Maybe even before we are summoned to Mayo. With the exception of the snow storm which hit them last Tuesday, weather there is somewhat nice. I really want to get to spend some of the time I do have left with my mom and brother. Plus it’d give me the chance to finish my bucket list…. MACHO COMBO BURRITO from Des Taco.

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Right now I am in limbo. I think that Dr. Alkhateeb is going to run another bone marrow biopsy along with litany of other tests. I don’t blame him for wanting to run another biopsy cuz the last doc (at Mercy) had all sorts of problems, so a second one might be in order. Theresa (Dr. Alkhateeb’s nurse) suggested we plan to spend a couple days there this visit. FUN FUN NOT.

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I wish I had some energy though. Or that my mind could focus. I think I am going crazy(er) cuz I can’t seem to do anything. My mind and my energy levels control how well I am doing, and right now, crappy is the word.

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Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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