At least I got up again

It’s October 29th, 2020. The Day before Beggar’s Night, which is the day before Halloween or Nevada Day if that is your preference. Today was a cold day, some 15 degrees below normal. Of course had to go out into it this morning when it was at the coldest. Such is my life I guess.

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I fell yesterday, a pretty nasty fall at that. Haven’t fallen in 5 years, I was due a good fall. I banged up my already bad knee, put a hella bruise on my right shoulder, and bit thru my upper lip. Today I hurt, I didn’t hurt much this morning but by afternoon I’m aching. Feel like I got hit by a truck. Must learn to not trust my right knee (my bad knee) cuz it locked up when I was hurrying and then I went down. Oh well. It is still mask season, no one needs to know that doesn’t need to know.

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Today went and had blood drawn. My hemoglobin was 9.3 which is good. Not falling fast at all. My platelets are 15, which is problematic. My platelets were 35 on Tuesday. I am dropping platelets ungodly fast. Which means, by Monday (my next lab work) I should have platelets of 1 or 2. SCARY. I’ll be ok, just a little upset that they wouldn’t give me platelets today.

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Now I do not have any medical appointments for a while. Next one I know of will be Monday getting platelets and maybe blood. Definitely platelets. After that I have a MRI of my lower back, looking for ghosts (not literally). When you get the 3rd cancer I have, sometimes little shadow thingies grow in your lower back making your movement difficult. Since my movement is difficult, makes sense to check for them. If I have them, its a quick radiation treatment and I will be able to walk better.

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Dr. Wehbe agreed to help me get an electric wheelchair. I especially need one now, cuz walking on my bad knee hurts like crazy. And I can’t wheel a regular chair with my shoulder all bruised up. So, an electric wheelchair seems to be in order. I have to find someone to put in a ramp for us too. 3 steps and a door block me from being outside and making it inside. Mom suggested that I contact the Leukemia and Lymphoma Society about finding a contractor to put in a ramp. Might be able to get it on the cheap that way. One way or the other, I am going to have an electric wheelchair before the end of the year.

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Teresa has decided that we are cancelling all unnecessary trips to Mayo for the rest of the year (I THINK). We had a palliative care appointment that set her off. The palliative people did much of nothing for us (Not their fault). So that is the first appointment on the chopping block. Then there is some tests (my 2 year tests to be specific) that Teresa feels should have been run back in May. So, instead of going to Mayo for a few days right before Thanksgiving, we are staying home. Unless Dr. Alkhateeb calls or messages with some treatment, I think Teresa is serious about not going and I am cool with that.

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Hmm, my good knee if hurting too. Will have to check it for a bruise.

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Peace, Love and Gummi Bears to my friends. May you have a most joyous Halloween.

Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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