2 days of no medical stuff

It’s a beautiful day here today in Central Iowa, it’s 68 degrees right now and supposed to get to 75 degrees. The sun is shining. Just a wonderful day to lay around and do much of nothing. Somehow I managed to get two days off of the medical things, today being the 2nd of those days. It has felt good to not be poked or prodded for 2 days.

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Last Monday I had to get platelets in a hurry. I was down to 4. Pretty dangerous area to be in. It took the nurses 5 tries to get an IV in. Heh, not my record, but still 5 is a bit excessive. Anyhow, I got 2 bags of platelets so I should be good for a week or so. Now we worry about my Hemoglobin, it should be low enough for infusion tomorrow or Monday. This is what my life has come to, waiting for my platelets or hemoglobin to drop low enough to infuse; not much of a life.

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Also on Monday, in the evening, I had an MRI of my lower back. Looking for markers of my 3rd cancer. These markers appear sometimes and mess with your mobility. Supposedly, “a quick shot of radiation” will take care of them and give me back some mobility, if I have these markers.

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Tomorrow is my normal Thursday blood tests. Like I said, my hemoglobin is probably low. But that is nothing. I go to the infusion center at the hospital and spend a couple hours getting blood. More interesting is I should get my prescription for the motorized wheelchair from Jocelyn (one of Wehbe’s nurses). She has been tasked with getting me the wheelchair. I haven’t seen her since Dr Wehbe tasked her with it, tomorrow will be my first opportunity to talk with her. We’ll get this going. I am running out of this year. Has to be done before the new year.

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Also, I am applying for disability placards, quantity 2. I can’t walk very far. I am physically and mentally disabled now. It sucks. But it is my reality. I lived with the mental disability for all my life, but this physical disability has hit me hard. Not being able to get around like I used to is annoying. My legs hurt all time.

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My mom comes to visit on the 8th and is staying till the 14th. A Sunday to a Saturday. This will be the longest visit she has spent with us (I think). But it’s all good. The weather is going to turn to crap while she is here, but it is November and the weather isn’t supposed to be in 70s. She is bringing her heavy coat. I’m just happy she is coming to visit. We are gonna celebrate Thanksgiving early. We will have a grand time. I have chemo the Thursday and Friday she is here, luckily it is just a pair of shots. So it won’t take long. I just want to see my mom.

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Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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