August 7th 2021 STILL AIN’T DEAD YET Party

It’s November 11, 2020 and it’s around 48 degrees. The sun is shining though and I am spending my day with the 2 women who mean the most to me in life… My wife and my mother. Couldn’t ask for a better day in November.

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My mom arrived on Sunday. It feels so nice having her here. Normally I miss her so much, but right now I can just talk to her and be with her. She leaved Saturday morning and things will go back to normal. I will miss her, but I call her or she calls me about once a week, so it could be worse.

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Monday I had to go get Platelets, Thursday or Friday I will be getting Platelets again. My platelets are dropping at an alarming rate. It sucks, my arms look like they have been thru HELL. Bruises are abundant because my platelets are so low. My hemoglobin might need a boost on Thursday or Friday too, but I don’t think so for sure. 9.2 on Tuesday, have to drop to less than 8. We shall see.

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Teresa did me a solid favor today (which I was going to do anyway). She called NuCara about my electric wheelchair. Found out that next step is being evaluated by a Physical Therapy place to see if my knees are bad enough for an electric wheelchair. I sure think they are. Anyhow, now we wait for a phone call from the PT place (only certain PT places can do the evaluation) and then we go do that. Then NuCara comes out an measures the doors and hallways and me I think. Then I will get my electric wheelchair. I should have it before Christmas. A Nice gift from my insurance company.

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I have decided I want a port or Hickman catheter. My arms can not take this abuse. Like I said, my arms look and feel like HELL. Going to talk to Dr. Wehbe about this tomorrow. I a pretty sure I can get a port here at MercyOne, to get a Hickman I think I have to go to Mayo, which we are pushing off.

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Had appointments on November 25th but we didn’t want to go then, beyond the desire NOT to drive 8 hours, it’s week 3 after chemo and week 3 I feel the worst I am gonna feel. So, they moved them to January 7th. The only foreseeable problem is the week of January 7th is 3 weeks after chemo (I may have figured that wrong). Teresa said she would take care of it. I am so lucky to have Teresa as my wife and caretaker. She takes great care of me.

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Playing Skyrim: Special Edition and Civ4 Warlords. Both ancient games. Both games I love. Skyrim I am having problems comiting to. I get up to level 15 or so and then delete the character. Civ4 Warlords I forget to attack until it’s too late into the game. I really need a new game. Supposedly Starfield and Elder Scrolls 6 are gonna be Microsoft Gamer Pass day 1 launches. Didn’t know Microsoft bought out Zeni Max, thereby Bethesda until reading today. Anyhow, I don’t care who releases these 2 games, just hope I am still alive to play them. Not asking for much, just not to die too soon.

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Speaking of living, I hope to have my STILL AIN’T DEAD YET Party on August 7, 2021, at my mom’s home in Chesterton, Indiana. By then, everyone should have gotten their Covid Vaccines. And things should be back to normalish. Yeah, assuming Cancer 3 doesn’t kill me before then, it should be all good. Jim and Mom are planning on moving back to Indiana in June or July. So August is a good time to throw a party. Teresa will finally be making Lasagna to feed the masses and to save a little money.

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Well, we are doing Thanksgiving tonight for us and mom. Turkey, Mashed Potatoes, Stuffing, Broccoli, Fresh Bread, since none of us really eat desert, we skipped the pies. But I am happy with what we have. And I couldn’t ask for better company. Just wish my brother was here.

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You all have a good afternoon, evening, or morning as your case may be. I have rambled on for entirely too long already. Let me go find a video and then I will title and post this to the appropriate places.

Author: Jeff Campbell

I am 49 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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