A visit a decision a visit a visit and the future

Mom and Jim came for a short visit (Jim has to work). They were here from Sunday evening to early this morning. This morning being December 10th, 2020. I do wish I could go visit them for Christmas but with my health deteriorating at an alarming rate I am not going anywhere. It was still a nice visit. I just wish my brother has more time off work.

We were supposed to go to Mayo Yesterday (Dec. 9th) but I had an anxiety/asthmas attack the night before going And that got me thinking that another bone marrow biopsy isn’t going to help. Both of my oncologists told me separately that I was going to die. So, we chose not to go to Mayo anymore. Let Dr. Wehbe continue to give me palliative care and live what life I can for the rest of it.

My friend Drew is coming to visit. He is even gonna wear a mask for me, cuz I have Zero immune system. He should be here today around 4. I miss my friends. All my friends. Wish I could go and see some of them, but alas I seem to be going nowhere. But Drew I owe dinner to. So, it’s a good thing he is coming around dinner time.. Don’t know what we are having yet, guess that we will worry about that when we get here.

Today, around 2, Shanon out Home Care nurse will be here. It is time to check my blood levels and have my dressing on my PICC line changed. I like Shanon, she is really emotionally motivated. So, she has cried every time she sees me. I find it odd that the service didn’t tell her that I am terminal. She learned that from me.

Tomorrow will probably be platelets and maybe some more hemoglobin. This living infusion to infusion is annoying. But the less pain alternative kills me sooner). Hospice never really crossed my mind. All I really know about is that they stop all infusions and wait for you to die. No thank you.

I know that I mention tweaking my right knee. Well, I did it again. I really ought to stop doing that. I want to rest in my final days, being is pain is NOT really restful. Well, that is that for today. Peace and Love to all my friends and family.

Author: Jeff Campbell

I am 50 year old guy, who beat blood cancer but is getting his butt kicked by bone marrow cancer. At this point it appears I am dying. Married and in love with the most wonderful woman in the world (27 years). She has stood by me thru a lot of crap and I love her so.

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