Yet another blog post

A moment of seriousness.  A very good friend of my mom’s passed away in August and her husband didn’t think to tell my mom until my mom sent her friend a card saying what’s up.  That is sad.  My mom and her friend had been friends for 50 years or so, you’d think someone would call her.  Rest in peace, Jackie, may you have been right and you are in heaven.

My friend’s wife passed away a week or so ago.  I hadn’t actually spoken to my friend in a long while, but this one hit me kinda hard.  Jason basically saved me a couple times while I lived in Ridgecrest, and it sucks that I haven’t been a good friend to him now that we have reconnected via Facebook.  Jason is like 8 years older than me, his wife was 20ish years younger than Jason.  Died resting on his shoulder in her sleep.  I don’t know many details (or any details as the case is) but I know that has to be really hard to wake up to your loved one on your shoulder cold.  Jason, I don’t know if you read this blog ever, but you can find my number in my profile and call me, I am here for you man.  I hope Mary is in a better place too.


Now on to the regular scheduled show….

I am on Day 5 of being sick.  I feel ok as long as I don’t cough.  Unfortunately, I am coughing quite a bit, especially in the morning (read that as starting at  4am) and the late evening.  During the day, if I am up and moving around I am mostly ok.  I do not think I am gonna be well by Saturday 😦  Not going to be able to go to Light the Night or definitely not be able to help out.  I am bummed about that.


I’m about to start learning CSS, you know the style sheet thing that goes with html on websites.  I have always wanted to learn since CSS came out, but never had a need or was willing to dedicate the time.  Now, my project that I am still not going to talk about needs a website.  Don’t have enough money to pay someone to do the website, so I am gonna do it.  After CSS, I will learn JavaScript.  Then I will be able to rock a website, then maybe I will be ready to share information about what I am doing.


Lou Malnatti’s Pizza is on the menu for dinner tonight again.  We order them frozen from http://www.tasteofchicago.com .  Good stuff.  Better than any pizza we can get fresh here. Well, to be fair, there is a couple pizza places a half hour or so away that are pretty good.  But I still think I like Lou Malnatti’s pizzas better.


I still haven’t played any games over the last few days.  Just not in the mood.  Guess I got other things on my mind.  My project and the website and learning CSS and JavaScript.  Other things.


Teresa is feeling a whole lot better, but she got antibiotics to move her along.  Kinda sucks for me to see her feeling so good while I am still so sick.  And I got 5 more days to go.  But I am happy for her, she was miserable for enough days, she needs to be healthy so she can go to work, so she can take off the days between Thanksgivingfest and Thanksgiving proper.  If they will even give her those days off, that is uncertain at this time too.


I may get booed by some of my friends for this.  But it looks like the Cubs are gonna be out of the playoffs.  Kinda feel bad for their fans, but from what I understand the Dodgers are just rockin right now and the Cubs aren’t.  Hey, it happens.  Now, I would love for the Cubs to go win the next 3 games, but lets be realistic.


Tomorrow’s D&D game might have to be put off a week.  I have a definite cough at the end of every sentence I speak.  I don’t want to cough into my microphone and blow everybody’s ears.  Besides, I am not much on sitting up either right now, get light headed.


Cori said that the music I have been posting with these blog posts “Sucks”.  I happen to like punk.  But today I will go out and find something more appealing to the masses

I’m alone and it’s weird

It is quiet and lonely in the house this morning.  The dogs are at the vets, Teresa is at work, I am here, possibly for the first time ever, totally alone in my house (we have always had pets since we moved here).  It’s a weird feeling, I almost don’t know what to do with myself.  I don’t think being this alone is good for me.  Weird stuff is running thru my brain.


Teresa’s car needed a jump this morning.  We jumped it, I let it sit for an hour, even took it for a little drive around a couple blocks.  Teresa took my car to work.  After the hour, I turned the car off and it started right up.  I am like cool.  I shut it off again, then went inside for a while.  Did I mention it’s 43 degrees and raining fairly hard?  I went back out 20 minutes later.  Tried to start it, DEAD again.  Luckily we live only a few blocks from the place that fixes our cars and they are cool people.  Called them up and they sent a guy over with a jump pack to jump the car.   We jumped it real quick and then I drove it over to the repair place.  They then gave me a ride home after telling me they will check everything and give me a call with a price.  What a morning.  I am waiting now for said call.  Alone, in my home, having weird thoughts.


My lunch that was tomorrow, got moved to Thursday, but then I was reminded that I have a cancer blood check appointment on Thursday, so that rules Thursday out.  Friday is shrink appointment, so that rules Friday out, so we are now having lunch some time next week.  LOL, it’s ok, he is a good friend, we will get together.  It’s his turn to buy lunch anyway.


We actually turned the heat on last night (and its gonna probably stay on).  Cold and wet is most of the forecast ahead for the next week.  Thank the gods that the furnace didn’t have trouble again when we turned it on.  It’s all good when it works, but a couple times over the last several years the furnace has had problems with a little gizmo inside it.  Same part every time.  Heh.  The repair place for furnaces sends the same tech out every time and he had actually not charged us labor for the last time, he just walked in with the little gizmo and swapped it out and walked out like 3 minutes later.  It’s almost ridiculous.


The dogs were really nervous when we dropped them off this morning.  They always get nervous over visits to the vet.  But when the vet tech picked them off to take them to the back, they both got super nervous.  I don’t think Mojo has ever been taken back, and the last 2 times Pucky went to the back, he had knee surgery.  This time they are just having their teeth deep cleaned.  But that does take putting them under, so I’m a little nervous for them.  By now, they are probably done and in recovery.  Won’t know how it went til later this afternoon.  But for now, no news is good news.


The high-level D&D game starts back tomorrow night.  I posted what the Paladin detected as his last action last time.  The reactions have been humorous.  Undead to the right, Devils to the left, Vampire in the middle.  LOL, if they play it right, it’ll be a challenge but not impossible.  If they screw around, there will be a total party kill before they get to the final guys.  I nerfed every encounter a little bit, so they should be able to handle this.


The low-level D&D game starts back on Friday night.  This will be the final adventure of the story arc that actually started like 4 months ago.  It might even be delayed another week due to the player whose character is the main focus of the finale might have to give his daughter a birthday party thing on Friday night.  I really should ask him if that is the case so we can announce that the game will be postponed 1 week.  I don’t want to run this final part without him actually playing his character as his character has a significant role in this set of encounters.


Flexeril is still keeping my back feeling pretty good.  But I can’t seem to do any stretches without a lot of pain.  My physical therapist said that’s not good, so he told me to stop going to him.  So, I called my pain doctors office to get on the list to try to get a sooner appointment, right now I am set to see him December 22nd.  DOH.  Anyhow, I am now on the list, that’s good.  Plus they called me in a refill on my Flexeril, I don’t know if I am gonna be on it forever, but for now, it’s good to have a supply.  And the grumpy lady who answers the phone at the pain doc’s office was actually pleasant with me, I made her laugh, I’m good at that.


Blood check is Thursday morning.  I’m not looking forward to my platelets (and rest of blood levels) going down more.  I feel nervous enough about where the platelets are, I don’t need added stress about them going down more.  And like I mentioned before, no one but me is noticing the other stats are going down a little bit each month, not as noticeably as the platelets, but still it is happening.


Teresa just Skyped me that she is coming home in an hour or so and finishing the day from home.  Can’t say how happy I am that she is going to be here sooner as opposed to later.  She is still sick, she shouldn’t have went to work in the first place.  I’m sure that the workers around her are making her leave.  I’m not afraid of her germs, heck I’ve lived thru all of Teresa’s illnesses over the years and only got 1 worse than her, most I have somehow magically evaded them all, only feeling bad for a day or so compared to her 4 or 5 days of being SICK.


Gonna mention this here.  I am toying with the idea of trying school one more time.  Starting in the Spring.  January actually.  I filled out the FAFSA.  I have figured out a schedule.  I know I can’t do online in the summer.  But I think I could do in person during a real semester.  I still have to talk to Teresa about it, so PLEASE no one mention this to her.  I will bring it up when she is feeling better.  This is very much in the kicking around the idea stage.   I think I could do a real semester.  Not sure.  But dammit, I think I am gonna try.


World Dance Party

I have achieved what I thought was impossible at this time.   I have actively sat in a chair for almost 3 hours (a couple short breaks) and my back is not hurting.  Miracle of miracles.  Physical Therapy has helped some, but the real credit has to go to Flexeril.  But truly, I do not care how I am sitting without pain, I just want to let the world know that I can now sit without pain.  Happy Hectic.


I ran a high fever on Thursday, the day I was supposed to go to mental therapy.  Almost high enough to contact my cancer doc and probably be admitted to the hospital.  Luckily over a lot of hours, 6 Tylenol got rid of the fever.  But I did not make it to therapy obviously.   We rescheduled for this Wednesday at 11am.  I don’t normally make morning appointments cuz I take a Flexeril in the morning and it normally knocks me out til after noon.  I am testing it today, I did not take a Flexeril this morning, gonna try not to take one until noon and then take a Flexeril nap.  So far so good, I am awake and functional.


I am thinking of buying a record player from amazon.  I have all these records and nothing to play them on.  The player I found does mp3s, cds, Bluetooth, etc… as well as plays records.  The thing is, its 120 bucks and we are supposed to be saving.  I have amazon gift card money saved up though, it has no other use as of now.   I guess I will have to run it by Teresa.


My mother and brother are at the Feast of the Hunter’s Moon in Lafayette, Indiana.  Wish I was there too.  I haven’t been for many years, but memories of it still stand in my head.  It was fun when I was a kid.  Now that I am older, it would probably be a different kind of fun.   Oh well, I how Jim and Mom have a good time.  Maybe next year I will find a way to go with you guys.


D&D games won’t be resuming next week as I had hoped.  Got too much going on next week.  The week after looks much more mellow.  Besides, I need some time to changed up what I was going to do in both the high level and low level games.  Still wish someone else would run a game I could be a player in, either online or in person.  But online everyone seems to want to use roll20 which I do not care for.  And in person is being really difficult to find.  I have to get down to Mayhem on a Wednesday night to see if any groups have an opening on a day or night that I have free.


It really sounds like we will be going to Disneyworld next February or so.  I priced out Disneyworld and Disneyland.  For EXACTLY the same trip, just the different destinations, World was like 1000 dollars cheaper.  Airfare being the HUGE difference.  Flying out of Des Moines is expensive.  And flying to Ontario, CA from Des Moines cost over double the price of flying from Des Moines to Orlando.  We could fly into LA and rent a car and drive to Anaheim, but that would be more expensive too.


Heh, my shrink put me on 2 clonazepam a day 6 months or so ago.  I can physically only take one a day if I want to be awake at all.  I haven’t seen my shrink in  all that time to tell him to cut the prescription down to 1, so we have a ton of extra klonnies.  Guess I will save them for if I get a real bad run of insomnia again.


This year I am not certain if I am going to do the Light the Night walk for the Leukemia and Lymphoma Society.   I know I am not collecting funds for it.  But I am not sure I want to go walk it again this year.  They moved it later in the year cuz last year was ridiculously hot.  That is a good thing.  Right now, I just don’t feel up to it.  I am gonna get my free t-shirt though, the one that says SURVIVOR on the back.  I will contact the local LLS chapter and arrange to pick one up before the event.  They are cool people, they’ll let me.


OK, at 3 1/2 hours of sitting, I have a small little pain spot on my back.  Not even really pain, just a little ache to remind me that my back is messed up.  This spot is located right at the trigger point that started this whole mess with my back.


I think YouTube has every video (well except the NSFW ones) ever recorded on it.   I just looked up The Fools, World Dance Party.  And I’ll be damned if someone hadn’t uploaded it.  Anyhow, I enjoyed it, so now you can too.

Welcome to Fall 2017.

Welcome Fall, let’s not make my mood crash and avoid the Seasonal Affective Disorder crap I go thru every year.  It’s September 22, the first day of Fall and it was 92 degrees outside today.  They say that the seasons come when they want to here in Iowa, I tend to believe that whole heartedly.  It is supposed to cool down on Monday or Tuesday along with a storm or two.  Just a few anomalous days of ridiculous heat and humidity to make us appreciate the cooler days when they come.


Mom made it home safely, about 12 hours after she left our house.   She got to the airport too early, had a 2 1/2 hour wait there, boarded the plane, plane had a problem, so they deboarded the plane.  She waited another 2 hours or for them to fix the problem.  She finally got to Chicago only to miss the bus home by less than a minute.  Had to wait another hour for the next bus home.  Then on the way home, she and my brother stopped for dinner.  Anyhow, she finally got home around 10pm after leaving our home around 10am.  LONG day for her.


I am back to missing my mom terribly.  She means so much to me.   I am so lucky to have her as my mother.   I will see her again around Thanksgiving, not too far away.  And she has plans to come visit again in February.  So it’s all good.  I talk to her on the phone a lot, 2 or 3 times a week, sometimes every day, some days several times those days.  Wish she hung out on Facebook, then I could just chat with her, but she plays on POGO and that is about all she does on the computer.


Another Thursday passed and another missed leukemia chat.  DOH.  Got to catching up with the Orville, only to realize that I missed chat.  I had EVERY INTENTION of logging in, but dammit, I forgot until 2 minutes after it was over.  Here’s to hoping that  next week I will remember to log in.


I came off my blood pressure medicine because my blood pressure was 76/44 at the last cancer doc appointment.  I feel a lot more energized now.  I probably should check my blood pressure and see where it is now, but heh, laziness prevails, I’ll just assume it’s normal and go about my day.


I called to get an appointment with my Shrink, running out of meds, not a good thing.  I see him on Friday, October 13th.  I still haven’t made contact with my Therapist though, supposedly I can’t see my Shrink without seeing my Therapist first.  But I have been going to the same place so long, they let me bend the rules a bit.  I guess on Monday I will message her and see when she can see me, I am sure it will be before the 13th.


I blew off physical therapy yesterday.  I just didn’t feel up to it moodwise.  I am still going thru some depression because of the pain, but it is getting better.  I can feel the changes happening.  So maybe physical therapy is working.  I am sitting up now writing this and not feeling any pain where he is treating,  pain in the neck and shoulders yes, but the mid and lower back feel good.  This is gonna be a LONG road to travel.


My wife works too much.  She is too dedicated to her job.  Yup, they don’t pay her enough for the crap she does for them.  Don’t get me wrong, she loves her job and doesn’t mind putting in the long hours.  I am the one with the problem.  I see her put in a 9 hour day (eating lunch at her desk working, not taking any breaks) and then doing a maintenance that night from 10pm to 2 or 3am, the getting up and doing it again the next day.  Come the weekend, she is exhausted.  The problem is that she is the only one who can do certain parts of what needs to be done, there is no one else to do these things.  Talk about job security, be the only one who knows how to fix 2 of the major systems that the company runs on.  It behooves them to treat her well, headhunters court her daily.  Facebook has made her an offer at 10% above her current salary.  She doesn’t want to leave where she is.  She loves what she does and doesn’t want to start over somewhere else.  I can see that.  I just wish the job was 8 to 5 and that was it.  Oh well, I can wish, but unless she changes her mind about switching employers, she is there for the long haul.  She’ll probably retire from there in 20+ years.


Next week I am gonna start the process to get rid of the white car.  It is long since DEAD.  Just been occupying space in our garage for a couple years.  Not drivable, not even currently tagged.  Stuff is piled on top of it.  Anyhow, we can not find the title for it anywhere.  So I have to go down to the DMV and pay 65 bucks for a title trace, which take a couple weeks.  Once we get clean title, I get to contact the Teen Services place, who pays Cash for Cars running or not.   Well, this one is definitely NOT.  I hope they bring a tow truck.  Need to get this done before winter hits cuz I don’t want to have our neighbor have to snow blow around Teresa’s car again.  Yes, we live in a townhome and share a driveway.  Our neighbor, very nicely, blows the snow off the whole driveway and doesn’t charge us anything for it.    He’s a real nice guy.


Adel-courthouse1

That’s a picture of the Adel (Dallas County) Courthouse.  It was built in 1848 and still in use today.  The light post out in front of the courthouse is also a Pokegym, so it is often busy around there.

It’s Thursday, right?

Well, mom just left to go to the airport to head home.  I am already missing her.  The visit was really nice.  I love my mom.  She is the greatest.  I do wish that she and my brother lived closer than 6+ hour drive away.  Yeah, I know its an hour flight, but that costs a bunch and money is well, money is what it is.  Anyhow, I know my mom doesn’t read my blog, but just in case she decides to….  Thanks for the visit, MOM.  We love you.


Got the results of my cat scan.  I have 3 gall stones of various sizes, which are doing much of nothing.  So, since they aren’t causing any problems, don’t worry about them until/unless they do.  OK.  I have 1 kidney stone, a little tiny 1mm (yes, 1 millimeter) kidney stone, which should eventually pass on its own.  Chris, my PA, offered to set up a kidney specialist appointment for me to see if they would recommend anything, I said nah, so I get pain every now and then, no biggie.  Certainly isn’t worth a copay to find out there is nothing to be done.


Wife’s car is in the shop, she is gonna take mine to go to work (if she goes in today, so far she has been working from home), which leaves me car-less.  Wouldn’t normally be a big deal, but today I have Physical Therapy at 3.  I should call and cancel.  But there is a small chance that her car will be fixed before then.   All that is wrong with it is the passenger side rear tire has a slow leak.  Not rocket science.


I’ve been having nightmares lately, I rarely have nightmares.  Not scary ones, but highly disturbing ones.  I think the pain is causing them… or maybe the flexeril I am taking to keep the muscles from freaking out.   Anyhow, disturbing is the correct word, I wake up thinking the most obscure thoughts and have trouble falling back asleep.  I will be happy when my back is “fixed” and I don’t have to take meds or deal with pain anymore.  Ha Ha Ha, a boy can dream, right?


I still haven’t been able to win a game of Mutant Football League (except the first when the other team had to forfeit for too many dead players).  I have scored in every game, but my defense sucks and whichever team I am playing against scores many more points.  It’s not getting frustrating yet, I am learning, I am getting better.


I am already back to CIV 4 Warlords.  Yeah, I didn’t get burned out for very long.  Still trying to beat the game in conquest mode.  I can get to 8 or 9 enemies defeated, but the last 1 or 2 are just annoyingly impossible.  UGH.  I don’t want to resort to NUKES, but that might be the only way.


I tried to play Skyrim some last night, but still suffering from Skyrim burnout.  So, I won’t be playing that for a while.  It’s ok, I will get back into it sooner or later.  I have no worries about that.  In the mean time I have MFL and Civ4 Warlords to keep me busy.


It wouldn’t be a Hectic.blog post if I didn’t mention my back.  I have found the times to take my flexeril which keep my back from hurting the most.  Yeah, the morning one knocks me back out for an hour or two, but for no pain its very worth it.  And the evening one just helps me fall asleep and lets me sleep thru the night.  I haven’t touched a pain pill in several days.  Woo Hoo.


I still haven’t written a letter to my old doctor letting her know that I am seeing a new medical provider.  I really should do that.  I got labs coming up in October and I don’t want to be called by her office when I am getting them done somewhere else.  Besides she did right by me, she is the one who discovered my leukemia.  However, it was definitely time to move on.


Teresa has this dream of putting heated floors throughout the living area.  I thought she was just talking about it, dreaming.  Nope, she is saving money specifically for that and wanting me to save my disability money too for the cause.  Personally, I think we need a new washer and dryer first, but since I don’t do the laundry and I do walk on the floors, my vote only 1/2 counts.  So, some time in the nearish future, we will have heated floors and no carpet.  I can live with that.


I think I have given up bipolar chats.  It’s always the same stuff every time I log in.  Same trolls, same whiners, same oblivious people.  It’s not that I am any better than these people, it’s just that I am tired of it, and have been for a while.  So, I don’t think I will be going back anytime soon.


Now, leukemia chat is a different story.  As long as they don’t start talking about how successful they are even though they have/had leukemia.  I am good.  I just always seem to forget it’s Thursday and miss the chats.  Really bad about that.  I know today is Thursday, but by this evening, I will probably forget AGAIN.


I took my morning flexeril a little late so I wouldn’t be so sleepy when my mom was getting ready to leave, you know, so I could spend a little extra time with her.  Anyhow, the sleepiness is hitting me now.  So, I am gonna split.  You all have a great day (whichever day you end up reading this).

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Luckiest Man Alive

Mom being here is going great.  We went to HuHot on Thursday night.  HuHot is always a good dinner and being with my wife and my mother is wonderful.  Friday night we stayed in and had this potato/sausage/cheese stuff that my wife makes.  Tonight, mom took us to the Machine Shed.  The company I am with is great.  They both really enjoyed their dinners.  I had flavorless mac and cheese, big disappointment.   But hanging with the 2 greatest women in the world makes it all worth while.  I love my wife, I love my mom, and I am so happy that they get along so well.


I am doing the stretches that the physical therapist gave me.  Doing them according to his instructions.  Not hurting while I am doing them.  But a half-hour or so after I am done, I am in a lot of pain.  As of day 3 of doing the stretches, I don’t seem to be going anywhere with them.  I see my physical therapist again on Monday.  Should be an interesting conversation.  But like I have said, I am giving this a go.  Really trying PT this time.  I hope this works.


My back is still thrashed.  Even Teresa has given up trying to get me to use my desk, at least right now.  So I am playing everything on my laptop right now.   It’s all good.  My new laptop has a more powerful processor and a similar video card to what my Desktop has.  Translation, with the exception on not seeing things on a 34″ monitor, it’s pretty much just as good playing games on my laptop.


With my back being thrashed, I can’t sit out in the living room with mom very much.  I feel kind of bad about that.  But I do go out and visit when I feel up to it.  And Teresa has really stepped up and is sitting chatting with my mom a bunch.  I wish I could go out there and join them, but after sitting for 2 hours at dinner, I just don’t have it in me to sit any more right now.  I know that mom understands, she is cool.


Mutant Football League is FUN.  I got good in practice, so I decided to try a game.  Every time I made a 1st down, I got a stupid penalty called on me.  EVERY TIME.  I wonder if this is a glitch or something I am doing wrong?  I had 3 touch downs called back for penalties.  But I did win the first game I played, by surviving longer than the other team.  Wow, it was wild, the field we were trying to play on was super deadly.  There was 8 yards of offense for the whole game.  lol.  Then I went to play another game and that is when the penalties started.  Really frustrating.  Gonna try another team and see if it was just the team I was playing or something else.  But even with the penalties, I was having fun playing.


I am not liking Rocket League very much.  Car soccer is just not my thing.  But it looks really pretty.


Still taking a break from Skyrim.  I think I burned out on the game for a while.  I know it’s there when I want to go back.  And I will go back, I have no question about that.  Civ4 Warlords is still my go to game.  That and screwing around with MFL.  Talk about 2 very different games.   MFL is a wild, intense, hands on game… while Civ4 is a turn based, mellow, casual game.   But hey, I am having fun with both.  So screw it, I will play what I like when I like and no one can say anything bad about it.


We finally got around to making an appointment for Pucky and Mojo to have their teeth cleaned.  Their teeth are not bad by any means, but it is time for a professional job on them.  Plus they both have teeth that have to be extracted.  It’s gonna cost us a minor fortune, but we love out fur babies and this is needed.


It’s the middle of September,  Thanksgivingfest is 2 months away and Sam and Shel who are hosting this year haven’t let me know if it would be ok to bring Pucky and Mojo to their house.  I asked originally in July or so.  I bet Sam forgot to ask Shel and thus the reason no one has gotten back to me.  They were so good last year at John’s house.  No accidents whatsoever.  But I would never assume it was ok to bring them.  So I guess I will get ahold of Sam and ask again.  Or maybe go straight to Shel.  One way or the other, I will know in a couple days.  Yup, I won’t put it off, or forget


Looking forward to seeing the Gang again at Thanksgivingfest.   It’s a tradition that I look forward to every year.  It’s the only chance I have to see the Gang every year.  And now that Teresa has taken to coming with me.  It’s doubly good.  I don’t miss her terribly and I still get to see my friends.

And the lunch with Andi and Shawn the day after Thansgivingfest is looked forward to as well.   Shawn is NOT going to cancel on me again.   Even if he has the bubonic plague from his kidlings, he has to come.  Andi has only cancelled on me once, and that was because it fell on her brother’s 40th birthday.  Anyhow, it’s always great to see the two of them.  And one year Tommy met up with us.  Brian said he might want to drive down to join us this year.  But Brian barely spoke to me last time I was in the Region, I don’t know if he is mad at me or if that just happened cuz it happened.  Oh well, no matter who shows up, it’s always a nice lunch.


Oh, my mother-in-law has decided that she can’t come to visit right now.  So, D&D might resume much sooner than I originally announced.  No promise to that at this point, but things are definitely looking that way.   I will be installing Mumble on my laptop, and getting things ready to run here on the laptop as opposed to the desktop cuz I can’t sit in my chair for 2+ hours.  It’ll be fine.   I actually have more room here in bed that I do at my desk.  Go figure.  I will let you all know as soon as its been decided.


Oh, for those keeping tabs, my platelets, white blood cells, and hemoglobin were all down yet again.  Biggest concern being the platelets.  I barely had a little cut on my thumb and it bled for 6 hours, not gushing but oozing blood for 6 HOURS.   This sucks, I am scared of where this appears to be heading.  I don’t want to go back to the infusion center.


And finally, I have an x-ray scheduled Monday morning.  Then a Cat Scan Tuesday morning.  All to find out IF I have a kidney stone or something else wrong with my right kidney.  A little scared about this too.  Especially scared at what can be causing the pain if it is NOT a kidney stone.  But hey, it’s me, and I am weird.  What does not kill me only makes me wish it did, sometimes.


Peace, Love, and Gummi Bears.

 

What a couple of days…

Oh what a couple of days………………..

Yesterday, I saw my new PA.  His name is Chris.  We chatted for a bit and I wowed him some with my medical history.  Barely got into it, so I figure I will wow him a lot more in the near future.  We discussed my possible kidney stone.  I did the whole pee in a cup thing and am waiting on the results call.  I hope he is going to call my cell phone and not the home phone cuz nothing is attached to the home phone number.   Anyhow, when he tapped my kidney area, I jumped.  We talked a whole lot about kidney stones and how the treatment plan goes.  Just waiting to hear from him now.


This morning was the nurse visit at my Cancer Doc’s office.  Got to visit with yet another nurse, who confirmed with us that there is nothing else to do to try to fix my falling blood numbers.  Platelets were back down to 39, WBD was 2.6, and Hemoglobin was 12.1, all down from where they were a month ago which was down from where they were a month before that.  Kind of disheartening to know there is nothing to do if they keep falling, until they fall far enough to warrant some action.  Teresa’s theory is that the marrow that used to be producing cancer cells stopped working all together and the good marrow is overtaxed.  As good of theory as any I have hear.  The problem is besides me being a bleeder, I also have like minimal ability to fight infections.  SUCKAGE.


This afternoon I went to my first physical therapy appointment with Todd.  Two new stretches and 20 minutes on a tens machine.  The stretches are pretty basic, I can do them, and I plan do them like he suggested.  I have nothing to say about the tens machine, it was 20 minutes of sitting there reading Facebook on my phone.   Todd seemed like a nice enough guy.  He asked pertinent questions and got to the point fairly quickly.  I liked that, more time to do stuff, less talk about it.  I have 2 appointments with him next week.  I will happily go, even though……


My mom is here to visit.  YAY.  I do not get to see her enough.  She came to visit for a whole week.  She is going to take us out to dinner two nights, once to HuHot and once to Famous Daves.  Beyond that we have nothing planned.  Teresa and I are not one to plan in advance.  Oh well.

The problem is I can’t sit out in the living room with my mom.  I can’t sit comfortably for any length of time right now.  Therapy today just made it worse it seems.  5 minutes sitting out there was all I could handle.  I did hook up her computer for her, so she has POGO to play.


Today was an eventful day for me for packages.  I got a new CD from Publisher’s Clearing House.  Another 70s music CD.  I like 70s music.

I also got my stuff from Amazon Prime Pantry.  Big heavy box.  Eventually tonight I will get around to unpacking it.

And finally I got my gizmos from Steam.  A game controller, and a thingy which puts my Steam game on the TV.  The controller was a necessity to play Rocket League and Mutant League Football Beta.


Mutant League Football is something I LOVED back on the Sega in its day.  I would play for hours on end.  Well, it seems they have updated the crap out of it and added a whole lot to it.  Release date is some time in October.  Right now is closed beta.  But open beta starts next week.  I haven’t hook up the controller yet or fired up the game, but I hope it’s as cool as the videos show it to be.


I’m hurting pretty bad right now and I haven’t even done my stretches yet.   No fair and no fun.  I really wish that my pain doc would have given me something beyond Flexeril to deal with my back hurting.  But I understand there is a huge push not to prescribe opiates, and he wants me to give physical therapy a real go.  So, that is what I am doing.  Giving physical therapy a go.  The prednisone trial just threw a wrench into getting physical therapy started weeks go so I would be better now.  Grrr.


Well, my pee in a cup test came back normal.  No blood to be found.  Chris has decided to go ahead with a CAT Scan to make sure I do or don’t have a kidney stone (You guys are getting a real time report on this).  I don’t know when this will happen yet, but hey, it’s all good I guess.  At least they are ordering it at the close Mercy Hospital, so we don’t have to drive all the way down town to the main Mercy Hospital.   Good thing we have good insurance cuz my life would be costing us a minor fortune right now.


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