We made it to the Region, more specifically my mom and brother’s house late last night. We did make it almost exactly 6 hours, which is great time. The joke of the night was “Teresa got her pilots license and we flew here.” Anyhow, so comes the start of the minimum for 4 months away from home. I am happy to be here with my family, but still upset as to having to be away for at least 4 months. But anyhow, I am gonna make the best of being here and try to not freak out any more as Monday draws closer.
The being said, I am still plenty freaked out about Monday, well not so much about Monday, more like Thursday. See, Monday is just appointments to talk. Then Tuesday and Wednesday are just the taking of anti-seizure meds. Thursday is when the chemo starts. 5 days of the lesser of the 2 chemos. Then I get a catheter for the chemo on the last 2 days 😦 Cuz the chemo is so nasty they have to flush my kidneys continually while giving it to me. Scary stuff. Plus, this will be the first catheter I have ever gotten while conscious. Stupid chemo.
Jim asked me if I wanted to go to HuHot tomorrow. It’s 100 miles more in the car and Teresa wouldn’t be able to go cuz she has to work. So I chose to pass even though I do love HuHot. It’s just that I don’t really want to spend that much extra time in the car after 6 hours to get here and looking at 6 hours to get to Mayo.
I hate my back, every morning no matter how I sleep, I wake up in some level of pain. It sucks. Today my back hurts significantly, but I am not gonna take a pain pill. I don’t want to be stonedish while around my family. I am sure most of you understand.
Mom is making me an egg roll for breakfast this morning. She says these egg rolls are “really good”. So, we shall see shortly how good they are. I told her I only wanted one because I don’t normally eat breakfast. Her cooking for me brings back all sorts of warm fuzzy memories. — For the record, the egg rolls were very good.
Oh, for those who may have missed it. I am having a Allogenic Stem Cell Transplant on the 17th. Which means, I am getting Stem Cells from a donor. I am not having a bone marrow transplant, which I thought I was getting earlier in the whole process. Although, the who team is called a Bone Marrow Transplant Team.
I have no clue what I want to do today. Jim asked, and my response was I was still asleep. I am all for just hanging out here. Lunch will probably be Steak n Shake, even though that is what Teresa and I had for dinner last night. The Steak n Shake here in Portage is really good.
Part of me doesn’t want to go thru this transplant now. No, I am not going to cancel, it’s just going to suck. The whole process is just plain going to suck. From the first meeting with the Pharmacist (Monday at 8:45) until the last day at the Transplant House, it’s gonna suck. Just saying.
OK, I am done whining about it. Sorry for the last section, just feeling sorry for myself.
Pucky is happy as a can be to be here. Mojo is happy as long as Teresa is around. This morning Teresa went out to get some stuff from the car, Mojo howled. Woke everyone up. I think it may be a long 4 months for Jim and mom.
We exchanged Birthday presents last night since I am gonna miss Jim’s and mine. I got the D&D Legend of Drizzt (however it’s spelled) game and a cool tshirt. We got mom a really cool Glow in the Dark Owl wind chime. And we got Jim a really cool blue tooth skull speaker. Surprised how good the sound from it is.
This might be one of the weirdest videos of all time. So, here ya go.