A Bunch of Babble

Still dealing with this stupid depression.  Stupid stupid stupid.  I know I have nothing to really be depressed about, but I am down.  I don’t think Teresa’s hypothesis (which I mentioned yesterday) is a factor in keeping me down.  It might have been the trigger, but it’s pure bipolar crap that is keeping me this way.  I should be in a good mood, I am getting what I wanted, but no, I am down in the dumps, thinking the world would be better without me in it.  No, I am not suicidal, I never get suicidal, I just got really down depressed, which is where I am now.

Furthermore, I know if I came off my Nimodipine this mood would flip in a heartbeat or two.  But I am not that stupid.  Cycling like a madman is not preferred over being depressed.  Just another crazy thought that goes through my head when I am down.  Heh, my filter must be off today.  Don’t mind me, I’m just the crazy guy in the corner wishing he wasn’t alive but not going to do anything to reach that wish.


I did go to lunch with my good friend Drew.  Yes, finally, the lunch we scheduled months ago finally happened.  Beirman Furniture (the business furniture store he works for) picked up the tab…  Thanks Nate.  We did go to HuHot and it was exceptionally good today and not very crowded.  So we had a nice lunch and a nice chat.  I almost forgot I was depressed, hanging out with my friend was good for me.


Then the dryer vent cleaner guy came.  He was a really nice guy.  If you live in central Iowa, then use Central Iowa Duct Cleaning, Gary is a stand up guy, did a great job, came out next day and didn’t charge extra for coming out to Adel, and his flat rate (including tax) was 106.00 dollars and he really had to work for it on our dryer vent.  Two major plugs, it took him almost a whole hour to unclog our vent, but now air flows through cleanly.


Now, after playing happy for a few hours today, I am feeling drained.  I am thinking of taking a nap between when I finish this blog entry and when Teresa gets home.  I don’t normally take naps this late in the day, but today I might just do it.


Well, I heard back from Mayo, May 17th is Transplant Day, Day 0.  Which makes the 8th day -9, when I first have to show up at the hospital to take some anti-seizure pills.  2 days of pills, then 5 days of 1 chemo, then 2 days of the other chemo, then a day off, then the transplant.  Then we find out if I have to have extra chemo after I get the transplant.  I hope not, that would truly suck, but Dr Alkhateeb has mentioned this possibility several times.


May 17th also is the day that the dietician people rescheduled the class from May 3rd.  DOH.  They obviously didn’t look at my schedule when they rescheduled the class.  Well, the class is mainly for Teresa and I will be having a lot of prep before the transplant, so maybe she can go while I am getting prepped.  Or maybe then can move it til the 31st when it’s offered again if they really want me to be there for it.


We are going to try to leave here the evening of the May 2nd and head to my mom and brother’s place.  It’s a 6 hour drive and Teresa plans to work a full day, then drive it.  OUCH.  But if anyone can do that, it’s her.  Us going depends on 3 things.  1.  We get all packed in time.  2.  Sumpter Pharmacy can get permission to fill my meds a day early and gets them filled in time.  And 3.  We get official word from Mayo that the donor is on board and it’s all a go.  (Yeah, we still haven’t gotten that).  I’m not too worried about the first 2, packing I can do while Teresa is at work and Sumpter Pharmacy has never let us down.  The 3rd item might be an issue, but I will start harassing them soon to get official notice.


The plan is to get to my mom and brother’s with the dogs LATE on the 2nd.  Then spend the 3rd, 4th and 5th there, seeing friends if they are up to it, spending time with my family, and I would say trying to get the dogs adjusted, but 3 days isn’t enough for that.  Then the 6th driving the 6 hours to Rochester from Portage.  Then taking the 7th off to just relax.  Then start my treatment on the 8th.   Seems like a solid plan if you ask me.  Everything seems reasonable except the 6 hour drive after a full day of work on the 2nd, I think that is borderline insane.


Oh yeah, Drew said he’s going to come visit me up in Rochester.  I told him it has to be after 20 days after transplant.  I will be pale, bald, and wearing a mask, but I will be happy to see him.  But he said he was coming, I said he didn’t have to, and he said that he was coming anyway.  That’s the kind of friend I have in Drew.


I have a couple other friends who were talking coming up to visit me, I do not know if they are still planning on it or if it’s even crossed their minds in the months this has been pending.  I guess I will have to reach out and find out for myself if they still want to come.  You know friends seeing you when you are at your absolute worse, fun fun fun.


Room in the car is going to be tight for the trip up.  Teresa has already blackballed a couple things I was planning on bringing.  However, she has agreed to my D&D books. Since I am only taking 4 or 5 and then having Modenkainen’s Tome of Foes delivered up there.  The case I am taking them in will fit without much problem.  I just get the feeling that the 2015 Dodge Dart was not meant to haul 2 peoples’ stuff for 4 months.  I think there is more room in the Neon, but Teresa doesn’t like to drive it cuz it’s a stick, well maybe not more room, but different shaped room (squarer trunk).


I’m also taking my big book about Skyrim.  It’s about the size of 3 D&D books.  I will make room for it.  Yup.


I can’t seem to get my head around being away from home for 4 months.  And that is assuming I get out on time.  Everyone that I have mentioned the 100 days to has basically chuckled and said, “OH, your on the 100 day plan” inferring that most people get stuck in the transplant house longer than 100 days.  Oh well, this is my mental block, I guess I will just have to live it.


Damn, I have been blathering for 1200 words or pretty close to it.  I think I will go grab something musically and then sign off.


Yeah, I usually try to find a video which means something or is special to me.  In this case, you get a video.  Sorry.

Insurance Approved, Tentative Date Set

As I said on Facebook, it has been over 60 hours since I last slept.  Had a weird but not unheard of reaction to Centrum Men’s Multivitamin.  I slept like a baby for the first two nights taking it, since then I have been awake.  Insomnia is definitely not new to me, however insomnia with an actual verifiable cause is.  But seriously, if anyone was going to have such an extreme reaction to 3 Multivitamin over 3 days it would be me.  Dr. Alkhateeb is going to be upset, he is the one who told me to that the Multivitamin.  This was definitely a mistake to do.  I agree that I should be taking some vitamins, but obviously not a super Multivitamin.


Tomorrow I have a blood test/appointment with Dr. Wehbe, the oncologist who saved me life the first round of Leukemia.  I finally get to tell him about the pending transplant.  I mean he knows but doesn’t know the details of what all has and is going to happen before the transplant.  And I think he has the right to know.  I also have to make sure that he understands that no one did anything wrong when the chromosomal stuff was missed, I misunderstood Dr Alkhateeb when we spoke the first time.  Chromosomal stuff is not normally checked on a bone marrow biopsy unless the patient gives a clue that it should be.  I was so typical AML that there was no reason to check.  So, it’s all good.


I just got great news, insurance approved my transplant.  And they have a tentative date for day 0 (transplant day) of May 17th.  Yeah, buddy.  Color me happy.  It puts my 100 days ending on September 1st.   So maybe, just maybe, I won’t miss Fall.


Tomorrow also we head back to the Gift of Life Transplant House and then Mayo early in the morning on Friday.  Who schedules appointments at 6:10am?  UGH.  Anyway, it’s just a 1/2 day visit at Mayo and then we head home.  Just a blood test, the Renal Exam that I failed before, and a meeting with the cancer shrink.  No worries here, it’s all good.


The wind is howling, it’s been raining all day, supposed to turn into snow.  Today is just a yucky day outside.  Tomorrow is supposed to be much nicer.  And next week is finally supposed to look like SPRING 60+ degree days.  Woot.  I will get a week or two of Spring before I have to report to Mayo.


Pucky and Mojo will be heading to the Region on the 28th and 29th or the 5th and 6th.  Next weekend or the weekend after.  Probably the weekend after would be my guess.  I have to be taking meds at the hospital on the 8th (chemo starts on the 10th I believe).  So time is running out to get the dogs to my family in Portage.  Heh, no worries, we’ll get it taken care of.


My mom is making the trip up to Rochester sometime during the week after transplant, when I will be totally a lump.  But hey, she wants to check on her baby.  I would never tell her not to come.  I assume there are flights from O’Hare to Rochester.


So tired, and my thumb still hurts, so I am gonna cut this short.  Got great news today, so happy to share it here.


More CPAP Blues, thank you Dr. Google

I went and saw Dr Donahue today (Chris, the PA, had today and tomorrow off) about my thumb.  She was very sympathetic about it.  Relayed a personal story of one of her fingers which had similar pain.  Explained that normally they prescribe NSAIDs and then send you on your way.  Well, because my platelets are so low, I can’t do NSAIDs at all.  So she tried to prescribe Prednisone (you know, the steroid that solves everything).  Since my transplant is in like 5 weeks, it just didn’t seem right putting Prednisone in my system right now, so I chose not to have it filled.  She said without treatment my thumb will probably hurt for a week to a week and a half if I take it easy on it, which I am trying to do.


OK, I went back on the CPAP per Dr Alkhateeb’s instruction and I am super compliant, getting 100 out of 100 on the app.  That’s right, I am doing CPAP perfectly according to ResMed.  However, during the day I am still fatigued/super tired.  I napped for an hour and 2 snoozes and failed at napping a 2nd time but got 10 minutes, so it’s all good.  I did some research with Dr. Google and he recommended a dental appliance for sleep apnea in conjunction with my CPAP.  Dr. Google seems to think I might not have sleep apnea at all and that I might have Upper Airway Resistance Syndrome, which according to a lot of stuff I read presents almost exactly like sleep apnea.  The “cure” for UARS is the same dental appliance used to treat sleep apnea.  Interesting.  It’s just a mouthguard similar to what football players wear, just designed to jut your lower jaw forward a bit to open said airway and keep from waking you many times during the night. Now, some places online say that this is uncomfortable at first, but you get used to it.  There is also a chance that it might loosen a crown or two in my mouth, that would be a real concern.  However, if I am gonna use the CPAP per doctor’s orders and not nap all the time per doctor’s orders, I have to do something.  And with all the money we shelled out to Mayo, we wouldn’t have to pay a penny for the dental appliance.  The only question I have is how long does it take to get a custom made dental appliance?  For that I will call Adel Dental Group tomorrow and ask.


Hopefully my transplant paperwork got to the insurance today.  It was supposed to.  15 work days from today is when they are supposed to give their approval.  That is when the magic begins.

I have no clue when we are taking the dogs to my mom and brother, it’s just going to magically happen over a couple of days between now and when the transplant procedure begins.

I have no clue when we are gonna get done all we need to get done, especially with my bad thumb slowing everything down.  But we shall persevere, what doesn’t get done just doesn’t get done.


Drew never called me back to confirm lunch tomorrow.  I guess I will call him later.  Would hate to miss lunch with my friend because we failed to communicate.


Dr Alkhateeb put me on Centrum Multivitamin with Minerals.  Which is all good and such, just every time I take a vitamin I get a touch of heartburn.  Now true heartburn is an impossibility for me cuz of my surgery in 2004.  No acid can get anywhere near the area of my chest.  So, it’s weird to have this little pain in my chest a half hour after taking the Vitamin.  I had this pain the last time I tried Multivitamins so I stopped.  Now I kinda have to take them.  So GasX to the rescue… every night.


I took care of everything today that I had to take care of.  Which consisted of making phone calls and relaying information.  Tomorrow I get to do more of the same, and possibly a trip to the doctor again for a referral to a dentist for the aforementioned dental appliance.  But I am gonna call the dentist first and make sure we can get it, and get it fitted correctly, in 3 weeks.


Hoping everything goes smoothly over the next few weeks.  Really can’t afford anything going wrong right now.  Already have my thumb being an issue, would hate to add anything else.


Anyhow, Teresa just got home.  So I am gonna go.


My plans have plans

Hmm, I sprained, strained, or tore something inside my right thumb.  Started hurting on Friday.  I think I am going to go to the doctor (well, Chris, the PA) tomorrow.  I wonder if the Adel Mercy office has an X-Ray machine?  Would be easiest for me if they did, then I wouldn’t have to go somewhere else.  For some reason I am thinking they do not, I am thinking I remember him saying so before.  Oh well, I will go see him, let him squish the far in joint, watch me squirm and yelp and then go about my business, which might include going to Mercy West Lakes and getting an x-ray of my hand.  Not a fun way to spend a Monday, especially not with other issues pending so close.


I am typing this mostly left handed, so I am not tempted to space bar with my right thumb.  It’s actually quite difficult.


Because I can’t type comfortably, my book that I am writing has been put on temporary hold.  I am approximately 8500 words in and feel pretty good about that even though I started writing 2 weeks ago.  I didn’t write anything while at Mayo, had my mind on other things.  I tried to write some (about 200 words) on Friday evening and it hurt my thumb a lot.  So, I have called a book writing hiatus.


If we do nothing for the speeding up of my transplant, it’ll happen in about 5 weeks or so.  15 work days is what insurance wants to approve the transplant.  I hope to be able to call the insurance company and possibly speed things up a bit.  I have the eerie feeling that my platelets are gonna tank 1 more time before the transplant, which would mean another platelet infusion which would cost them money.  So, you can see it’s in their best interest to approve me for the transplant early.  According to my transplant doc, it’s a slam dunk case, I get the transplant or I die.  Simply cut and dry.


Teresa discovered a way to play with her PlayStation on her Mac.  This is a good thing because there really isn’t a whole lot to do up in Rochester if you are the Primary Care Giver and not actively giving care.  Teresa plans to work, thus we are dragging her Mac up (used to be my Mac, long story) to Rochester.  If she happens to play the new God of War game in her spare spare time, it’s nobodies business but hers and I guess technically mine.


I am taking my D&D books with me.  I am gonna work on a large campaign for when I can get back to playing online with my friends.  This will probably end up being the largest campaign that I have plotted out, but when all you have is time, it’s, I won’t say easy, it’s less stressful than when you are budgeting time that you probably should be doing something else with.  And Mordenkainen’s Tome of Foes is supposed to come out May 29th, so I have a new book of monsters to throw at the group.  Yeah, this campaign should turn out EPIC.


We still haven’t taken the dogs to my mom and brother yet.  We are holding out to the last possible minute.  It’s going to be rough to leave them behind, but this is what is the best for them.  The other options we had were too expensive and Pucky and Mojo wouldn’t get the amount of human contact they want/need.   So, when the transplant is scheduled, we will make the pilgrimage to the Region and drop off our furbabies.


I have lunch scheduled on Tuesday with my friend Drew.  Gonna suggest Gusto Pizza or HuHot Mongolian Grill to him and let him make the choice.  I am fine with either of these two places.  Gusto cuz well, it’s the best pizza we have found in the Des Moines area or HuHot cuz I am soon not going to be able to have fresh fruits and vegetables for quite a while.  So either choice is cool with me.


Yeah, for you who may be interested in sending something to me while I am in recovery.  Don’t send a fruit basket and any flowers.  Beyond the reason that both can kill me, they are also not allowed at the Gift of Life transplant house and will be rejected.  I will post the address for cards and stuff like that when we have a permanent housing spot for the 100 days.


Speaking of the 100 days.  Teresa overheard some of the Primary Care Givers talking about the 100 days.  Or the 160, 240, and year that these women had been in the transplant house.   I will go fricking NUTS if I have to stay much longer than the 100 days I was told.  I can understand if I am sick they aren’t letting me go, but if I am healthy, the damn well better let me go when they said they would.


As it stands, I won’t be cleared to travel anywhere for at least a year after my transplant.  So May 2019 is what it looks like.  That is ok, we wont be able to afford to travel before then anyway.


It snow again last night.  Started on APRIL 14 and snowed right into APRIL 15.  Someone needs to wake up mother nature and let her know that he world is supposed to be experiencing Global Warming.  Snow in mid-April is ridiculous.


Tomorrow I need to call Julie, my shrink’s secretary and relay the info that Mayo send to me for my shrink.  They asked for a letter with diagnoses and treatment stuff.  Still don’t know the name of my cancer shrink and I guess they aren’t giving it to me for my shrink either.  Oh well, we have a fax number and a general idea of who to send it to for sharing with Dr. Alkhateeb and the Cancer Shrink.


Heh, when I started typing this entry, I didn’t think it was gonna be over 1000 words.  I guess I had a lot more on my mind than I have had recently.  I guess I’ll cut this off here, I think I have ran out of ramble for now.


I may have played this song before on my blog.  But hey, “Don’t Stop Me Now”

Mayo, Pokémon, Teresa and Me

We got home from Mayo about an hour ago.  Tired, very very tired.  4 days of run here, run there, wait, run some more.  Every test that was promised happened except no Spinal Tap (darn) but definitely bone marrow biopsy #9 (with #10 scheduled already).  I managed to fail and unfailable test, I failed the renal exam cuz I could not pee on command and they were afraid to do the catheter thing cuz my platelets were so low.  So, we are heading back next Thursday for tests starting at 6:10am on Friday.  At least this time it is just 1 night and 1 day.  I am pretty sure after this week, next Friday will be a chump when it comes to the running we have to do.


Dr Alkhateeb made some points about my fatigue issues.  Like I shouldn’t really be having them.  So we are cutting Ambien completely, regardless of if I can sleep or not.  I am gonna be restarting my CPAP now that I google what I had wrong last time.  He also put me on a multi-vitamin do to my stomach surgery 24 years ago.  Also along with all this, I have to get up and move around more during the day.  Meaning a lot less napping for me.  The changes are not going to be easy, but heh, I can do it.  He said that he will not do the transplant if I am sleeping 12 hours a day, motivation enough.


Teresa has agreed to start doing stuff with me in the evenings (get your minds out of the gutter, or maybe it was just my mind).  We are gonna start walking or something like that, take the dogs out for evening strolls.  Something more than me walking back and forth in my house.


Weird thing, with the exception of the 9 day before transplant and the day of transplant, Mayo does its thing out patient.  Yup day 1 after transplant you are sent to stay in the transplant house.  You get up in the morning get blood drawn, then if you need blood products (hemoglobin or platelets) you go to the hospital and get it.  Otherwise you just go about your day at the transplant house.


Speaking of the transplant house.  It was everything we expected it to be.  No TV in the rooms was a little weird.  And eating only in the dining rooms was a little odd too.  But the place was meticulously clean and everyone seemed friendly.  So, even if it didn’t have a 30 dollar a night price tag, we would probably stay there.


My book was coming along well, til I determined that my fight scenes needed help, so another book was bought to read about writing fight scenes.  So, after I finish reading this new book, I will go tweak the fight scenes.  I tell ya, I am liking what I have written so far and I am by far my own worst critic.


You can tell the dogs missed us as much as we missed them.  Leaving them for however long is going to be hard.  Oh, I say however long because Teresa met some caretakers at the transplant house who were talking about being there for 100s of days one lady almost a year.  Gods I hope I don’t have to stay in Rochester for anywhere near that long.


I really should play some of my new games.  But I just haven’t felt like it.  I guess I just haven’t really been in a gaming mood.  That’ll hopefully be changing soon.


Oh yeah, DUH, the date of the transplant.  Still don’t have that as insurance now has 15 business days to approve it.  So we don’t start holding our breath yet.  The day is coming sooner as opposed to later.


We met more members of the TRANSPLANT TEAM while we were at Mayo.  Good thing we did, cuz now it makes a lot more sense.  We got a lot of questions answered and I feel pretty comfortable with the whole thing.


Dr Alkhateeb is very concerned with my bipolar.  On Friday along with some tests, I am meeting a Cancer Shrink.  Well, a psychiatrist who deals exclusively with people dealing with cancer.   I have no clue if she will know how to handle me, but we shall see.  They have also promised me talk therapy while I am being treated.  So, that is all set.


It figures that today, the day we left Rochester, was the first day where it was truly nice outside.  It was 50something, all the snow had melted.  It was a truly beautiful day.  The sun came out for the first time in our 4 day stay.  It’d been nicer if it had come out yesterday.


Oh yeah, we played Pokémon Go while we were in and around Mayo.  It was fun playing the game with Teresa.  We did some raiding, we gym battling, and a whole lot of catching.  Actually looking forward to going back just for the Pokémon, because now I am in the Pokémon rat hole of a town Adel.  Don’t get me wrong, I love our little town for a lot of reasons, but not because of it’s Pokémon craze.


Anyhow, I think I covered everything I wanted to cover tonight.  Thank you to my faithful readers, my fair-weathered readers, my new readers, my old readers, and anyone else who reads my ramble.  A little music to send you on your way…


Complete with Chili-Cheese Fries

My platelets tanked again, on Thursday they were at 11.  Chris, my PA, have a mini-freak out about this and called Dr. Wehbe’s office who, in turn, set me up to get platelets on Friday.  We arrived at the infusion center 10 minutes before the appointment time (cuz I knew I had to do the whole check-in procedure).  And we sat.  We sat out in the waiting area for a good 20 minutes before they called us back.  Finally got called back, got the IV hooked up, made some funny jokes, chatted with a few of the nurses who remember me from Leukemia Round 1.  And then I waited.  Turns out that the hospital was OUT of platelets.  It was finally 2 hours later when the nurse informed me that the platelets had arrived and off she went to get them.  Getting the platelets was nothing special except they were really cold going in.  45ish minutes later, I was out of there.  Hopefully this infusion is the last one I get until transplant time.


Dr. Wehbe’s office faxed Dr. Shin, Dr. Shin doesn’t want my information any more.  He called me and politely informed me that Dr. Alkhateeb is the one things need to be faxed to.  I had already had Chris fax the results of my CBC to Dr. A.  So the call was really unnecessary except to let me know to tell Dr. Wehbe’s office to only fax Dr. A and not Dr. Shin.


Next week I find out “THE PLAN” as far as the transplant goes.  Whether that means Monday or Friday or in between, I don’t know, just “next week”.   I am anxiously awaiting this plan.  We have things to add in between parts of the plan (like getting our dogs to my mom and brother).   This plan will give a more real feel to this whole procedure, until now, it’s just seemed like it could be happening to anyone, if that makes sense.


I have felt like crap since the platelets.  Might be coincidence, might be some weird reaction.  But feeling like crap wasn’t the goal.  My head is pounding on and off (Tylenol has helped this) and I have a general feeling of crapiness.  Can’t really identify anything as wrong, just don’t feel well.  Oh wait a minute, I started a new blood pressure med, and I always feel crappy after starting a new blood pressure med.  That is probably why I feel so rotten.  Just coincidence.


I still haven’t played my Train game.  Yeah, I keep saying I am gonna.  Just haven’t for one reason or the other.  Now I think I am going to save it to have something to do during recovery.  There are going to be many hours of just sitting around doing much of nothing.  100 days is a long time to fill with stuff.  A new game might just fill a good chunk of that.


I haven’t played Skyrim in a couple weeks.  I don’t really know why, just haven’t felt like it.  Lots of hours have been logged into Skyrim, so I don’t think I am gonna just get up and walk away from the game.


I’m thinking of trying to write a sci-fi/fantasy story.  I have what I think is a good idea in my head.  Been having dreams about this story.  Just have to get over my thing about writing dialog…. when I have written stories before, the dialog always sounds corny.  There is going to be a lot of dialog in the story I am gonna try to write.  So, either I fix it, or I let someone else in on my concept to help with the dialog.  Oh well, right now it’s just a jumble of an idea in my head.  Maybe tonight or tomorrow I will put something down and maybe make an outline.  I assume that is what authors do.


Teresa cooked 2 types of chili tonight.  I was going to cook 1 of them, the traditional Campbell chili, but she knew I wasn’t feeling well, so she made that.  Then the 2nd chili is like Del Taco’s.  Or at least what we remember Del Taco’s to be like.  Since we live 100s of miles from the nearest Del Taco we have to go by memory and not actual.  But tasting her chili brought back memories, and its gonna be delicious over crinkle fries and with nacho cheese.   Yep, we are gonna go there, Chili-Cheese Fries inspired by a craving for Del Taco.  Heh, it’s only been 15 years since we had Del Taco.  Now, those of you who read this who are lucky enough to have access to real Del Taco Chili-Cheese Fries, have some for us.


Now if she could only replicate Carl’s Jr Western Bacon Cheeseburgers, we’d be very happy.  The Western Bacon Thickburgers that Hardee’s comes out with every so often just aren’t the same.


 

Stupid Insurance Company

Teresa is writing a letter of appeal to our insurance company appealing their decision to not pay for the stem cell donor search that I need to live.  I have tried to write it a couple times, and all I have really come up with is garbage, so I will leave it to the professional and then just sign my name.  It’s really stupid that our insurance doesn’t pay for this search, my transplant doc was livid when he heard this.  It’s not like it’s optional for me, it’s either I get a transplant from an unrelated donor or I die.  Heh, seems pretty cut and dry simple to me.  I can’t think that insurance companies would intentionally be out to screw the blood cancer patients.  Hell, since it’s a privately funded insurance policy, I might be their only blood cancer patient.  Heh.


Tomorrow we are heading to Rochester, Minnesota for a blood test and visit with Dr. Shin on Friday.   This is a truly unnecessary visit but he seemed pretty adamant that I come see him.  So off we go.  The good news is we will be back home Friday evening.


There isn’t supposed to be any snow for the next two days.  So, that is a good thing too.  I would hate to do the 3 1/2 drive (OK, Teresa drives) if there was snow falling.  The 35 looks like a road that snow just blows across.  You know the 35, it was on the national news a few weeks ago for 2 major accidents cuz a lot of people around here do not know how to drive on slick surfaces.


I feel like complete and absolute crap.  Fatigue out the ying-yang and a massive headache for who knows how many days its been now.  Put these two things together and you get a totally crappy feeling.   Hoping that my platelets are 10 or below on Friday (gonna really suck and be 14, just watch) and I will get a platelet infusion.  That should help with both of the issues.  Definitely with the headache.


Teresa gave me a Maxalt in hopes of stopping my headache.  She switched to caffeine pills for her migraines (which are working great according to her).  Yeah, Maxalt is a migraine medicine, not sure if it works on lack of platelet headaches, but I was very willing to give it a try.

If Maxalt fails, I may bust out my last shot, I know from earlier use that the shots do lessen the headaches for a while.  The one tonight is a doozy, so lessening it might make it bearable.


Due to circumstances beyond our control, my mother-in-law will be unable to take care of Pucky and Mojo while we are in Rochester.  Thankfully, my mom and brother have agreed to take care of them for us.  So instead of them having to travel all the way to New York they are only going to have to ride with us to the Region.


Speaking of the Region.  Teresa and I will be in the Region, for a few days at least, when we drop off the dogs.  We do not know when this will be for sure.  But I will post here and directly on Facebook travel plans so any of my Region friends that want to see me before all this transplant business will have a chance to do so.


Also, any of my Des Moines area friends, if you want to see me before we leave for the transplant, let me know and if I am up to it, we will do lunch or something.


A friend of mine invited us down to Houston for a visit.  Right now we might not be able to afford the medical treatment in order to save my life.  How in the Hell would we be able to afford a trip to Houston?  I know her heart was in the right place, but there is just no way we could do it.  Plus I feel like crap.


Gonna cut this entry short, head not cooperating.


and Cori, I know you don’t like The Offspring.