Category: Uncategorized

A Bunch of Babble

Still dealing with this stupid depression.  Stupid stupid stupid.  I know I have nothing to really be depressed about, but I am down.  I don’t think Teresa’s hypothesis (which I mentioned yesterday) is a factor in keeping me down.  It might have been the trigger, but it’s pure bipolar crap that is keeping me this way.  I should be in a good mood, I am getting what I wanted, but no, I am down in the dumps, thinking the world would be better without me in it.  No, I am not suicidal, I never get suicidal, I just got really down depressed, which is where I am now.

Furthermore, I know if I came off my Nimodipine this mood would flip in a heartbeat or two.  But I am not that stupid.  Cycling like a madman is not preferred over being depressed.  Just another crazy thought that goes through my head when I am down.  Heh, my filter must be off today.  Don’t mind me, I’m just the crazy guy in the corner wishing he wasn’t alive but not going to do anything to reach that wish.

I did go to lunch with my good friend Drew.  Yes, finally, the lunch we scheduled months ago finally happened.  Beirman Furniture (the business furniture store he works for) picked up the tab…  Thanks Nate.  We did go to HuHot and it was exceptionally good today and not very crowded.  So we had a nice lunch and a nice chat.  I almost forgot I was depressed, hanging out with my friend was good for me.

Then the dryer vent cleaner guy came.  He was a really nice guy.  If you live in central Iowa, then use Central Iowa Duct Cleaning, Gary is a stand up guy, did a great job, came out next day and didn’t charge extra for coming out to Adel, and his flat rate (including tax) was 106.00 dollars and he really had to work for it on our dryer vent.  Two major plugs, it took him almost a whole hour to unclog our vent, but now air flows through cleanly.

Now, after playing happy for a few hours today, I am feeling drained.  I am thinking of taking a nap between when I finish this blog entry and when Teresa gets home.  I don’t normally take naps this late in the day, but today I might just do it.

Well, I heard back from Mayo, May 17th is Transplant Day, Day 0.  Which makes the 8th day -9, when I first have to show up at the hospital to take some anti-seizure pills.  2 days of pills, then 5 days of 1 chemo, then 2 days of the other chemo, then a day off, then the transplant.  Then we find out if I have to have extra chemo after I get the transplant.  I hope not, that would truly suck, but Dr Alkhateeb has mentioned this possibility several times.

May 17th also is the day that the dietician people rescheduled the class from May 3rd.  DOH.  They obviously didn’t look at my schedule when they rescheduled the class.  Well, the class is mainly for Teresa and I will be having a lot of prep before the transplant, so maybe she can go while I am getting prepped.  Or maybe then can move it til the 31st when it’s offered again if they really want me to be there for it.

We are going to try to leave here the evening of the May 2nd and head to my mom and brother’s place.  It’s a 6 hour drive and Teresa plans to work a full day, then drive it.  OUCH.  But if anyone can do that, it’s her.  Us going depends on 3 things.  1.  We get all packed in time.  2.  Sumpter Pharmacy can get permission to fill my meds a day early and gets them filled in time.  And 3.  We get official word from Mayo that the donor is on board and it’s all a go.  (Yeah, we still haven’t gotten that).  I’m not too worried about the first 2, packing I can do while Teresa is at work and Sumpter Pharmacy has never let us down.  The 3rd item might be an issue, but I will start harassing them soon to get official notice.

The plan is to get to my mom and brother’s with the dogs LATE on the 2nd.  Then spend the 3rd, 4th and 5th there, seeing friends if they are up to it, spending time with my family, and I would say trying to get the dogs adjusted, but 3 days isn’t enough for that.  Then the 6th driving the 6 hours to Rochester from Portage.  Then taking the 7th off to just relax.  Then start my treatment on the 8th.   Seems like a solid plan if you ask me.  Everything seems reasonable except the 6 hour drive after a full day of work on the 2nd, I think that is borderline insane.

Oh yeah, Drew said he’s going to come visit me up in Rochester.  I told him it has to be after 20 days after transplant.  I will be pale, bald, and wearing a mask, but I will be happy to see him.  But he said he was coming, I said he didn’t have to, and he said that he was coming anyway.  That’s the kind of friend I have in Drew.

I have a couple other friends who were talking coming up to visit me, I do not know if they are still planning on it or if it’s even crossed their minds in the months this has been pending.  I guess I will have to reach out and find out for myself if they still want to come.  You know friends seeing you when you are at your absolute worse, fun fun fun.

Room in the car is going to be tight for the trip up.  Teresa has already blackballed a couple things I was planning on bringing.  However, she has agreed to my D&D books. Since I am only taking 4 or 5 and then having Modenkainen’s Tome of Foes delivered up there.  The case I am taking them in will fit without much problem.  I just get the feeling that the 2015 Dodge Dart was not meant to haul 2 peoples’ stuff for 4 months.  I think there is more room in the Neon, but Teresa doesn’t like to drive it cuz it’s a stick, well maybe not more room, but different shaped room (squarer trunk).

I’m also taking my big book about Skyrim.  It’s about the size of 3 D&D books.  I will make room for it.  Yup.

I can’t seem to get my head around being away from home for 4 months.  And that is assuming I get out on time.  Everyone that I have mentioned the 100 days to has basically chuckled and said, “OH, your on the 100 day plan” inferring that most people get stuck in the transplant house longer than 100 days.  Oh well, this is my mental block, I guess I will just have to live it.

Damn, I have been blathering for 1200 words or pretty close to it.  I think I will go grab something musically and then sign off.

Yeah, I usually try to find a video which means something or is special to me.  In this case, you get a video.  Sorry.

Just another not-so-manic Monday

Today my mood crashed.  I hate being bipolar and having simple things throwing my mood for a loop one way or the other.  Teresa hypothesized that my down tumble came from the excitement of if insurance was going to pay for the transplant or if I was ever going to get the transplant to the let down way I was informed, by accident.  I have still never been officially informed that it’s going to happen but had multiple people unofficially tell me of the date.  I am not sure who to blame for not letting me know officially, but Dr. Alkhateeb is the one in charge, so I guess I can blame him.  Anyway, my mood is crap right now, but I will try to keep this blog post from reflecting that too much, just a little.

I didn’t sleep much last night, went to bed about 11:15pm and woke up at 2:20am and couldn’t fall back asleep.  Don’t know what was up with that.  I then napped for a few hours after Teresa left for work, but even then it was only 7:30am to 9:30am.  I finally caught another hour around 1pm, making the grand total for this sleeping block to be 6 hours or so.  I am tired on top of depressed.

We have went out Pokémon Go playing every night since we got back from Mayo.  I wouldn’t be playing it at all if not for Teresa, but I do enjoy spending the time with her.  She is about 3 magikarp away from upgrading her magikarp to Garados.  I’m sure she has more upgrades ready, but that is the big one that is for prestige and the quest.  I have the special pieces for Sloking and Porygon 2 but need a few more of slopoke and porygon than she does magikarp.  Magikarp are much more common.  She is level 25 and I am barely level 24.  She is getting higher level Pokémon than I am.  But it’s all good.  She has the advantage of having a Pokémon rift area around where she works.  I only go hunting in Adel, well and at Mayo/Rochester.

Waiting to hear back from the Bone Marrow Transplant team (forever referred to as BMT team from now on).   Still wondering if we have to attend the silly class on the neutropenic diet.  Also I wanted to confirm that May 17 is Day 0, transplant day and not day -9.  I would know this had I been officially told.

I played Skyrim for a while today, something I haven’t done in a month or so.  I started over yet again.  So HECTIC my cat rogue is only level 9 right now (although he has the xp to be level 11, long story about why I don’t level to 10 right away).  Anyhow, it provided a bit of distraction today when I specifically needed it.

Tomorrow I am finally having that lunch with Drew.  The one we have both cancelled a couple of times.  The one that was originally scheduled for a couple months ago.  We are going to HuHot, because soon I won’t be able to eat raw or undercooked vegetables which is what you basically get at HuHot, thoroughly warmed but not overly cooked vegetables.  So, my plan is to get it while I can.

After lunch I have to come back to the house to meet up with the Dryer Vent Cleaner guy.  He seemed really nice on the phone.  I hope to be in a better mood.  It will suck if I am not.  I can fake a good mood at lunch, but at the house it’s a completely different thing.  Teresa googled how much it would cost and google said between 150 and 200 dollars, the guy I found was only 100+tax so 106.  BARGAIN.  I hope he doesn’t do a half-ass job for the half price.

Teresa wants to put a bunch of the bags of clothes we are throwing away out on the curb.  I am kind of against this, cuz A. Trash doesn’t run til Thursday and B.  It’s supposed to rain Tuesday and Wednesday.  Gonna take these bags of clothes and make them bags of wet clothes. Oh well, she is the boss.  I just cart the stuff around.

I’m feeling a little better, let’s go do physical labor.  Music first

Finding new/old stuff is cool

Beginning to feel the anxiety really building up.  May end up taking an extra Clonazepam (Klonnie).  Have generalized anxiety and specific anxiety issues really does suck.  Wish I was normal, right now I would just have specific anxiety and probably be able to handle it without resorting to meds.  Ah well, such is my life, get remotely nervous about something and it turns into harmful anxiety.  I know I can’t help it, that it’s part of what makes me who I am.  Just wish this part of me would calm down a little and let me have some peace.

I am still having problems with my right thumb.  I didn’t take proper care of it, so it didn’t get better.  Stupid me, I should have listened to Dr. Donahue.  I guess I will start taking better care of it this week and see if I can’t get it to stop hurting as much.

I have resumed writing my book.  As of now I have added about 600 more words, but I just started again, so that’s cool in my opinion.  Hoping to break 10,000 words tonight.   I hope to get a good chunk of the book written before I get chemo stupid.  But since chemo starts in 18 days, it’s gonna be near impossible to meet my goal, but that’s ok, after my chemo stupidity goes away, I will be able to resume writing and finish my book.  My goal for pre-chemo is ridiculous and a seasoned writer would have problems matching it.  Especially considering all the crap we have to do before we leave for my family’s house, which is in a week and a half.

We managed to clean all the old clothes out of the bedroom closet.  Took us all last evening and into the night, but it is done.  I’d like to say we are doing the responsible thing and donating all the used clothes to charity, but reality says we don’t have the time so it’s all gonna be garaged.  Most of the clothes were thrashed anyway.  I did find my ZOO sweatshirt circa 1989, which I kept for sentimental reasons.  Also found 3 pairs of jeans and a bunch of shirts that will fit me now.  Weird since we haven’t really went into the closet for several years.  Now I have more clothes that fit me than Teresa does.  I never figured myself to be a clothes horse, but damn I own a lot of t shirts.

Tonight we plan to move the great clean clothes pile into the closet.  The great clean clothes pile has grown entirely too big over the years.  We should have never started it and I am glad we are finally going to get rid of it.   It started as a temporary spot to pile cleans clothes before they were put away.  Then more clean clothes, then more clean clothes, and so on and so forth, it’s grown out of proportion.

Teresa is really digging God of War.  Kratos has turned into an even bigger jerk than he was in previous games.  And Arteus (Kratos’ son) is still a putz (but you can give him upgrades to his bow and equipment that makes him a worth while putz worthy to tag along).  Teresa found a walkthrough online so she started the game over and is amazed by all she missed on the first try.  It’s all good, she is having fun, that is all I wanted for her.  Oh yeah, for those that are familiar with the God of War games, Kratos sleeps with no one. Very not like him in previous games.

Well, Teresa have started on the Great Clean Clothes Pile, I guess I should help.  A little music before I go though.

Another Day Another Trip to Mayo

Yup, we drove to Mayo yesterday.  We drove back today.  4+ hours in each directions.  This short trip was just to take a few tests that were leftover from the trip last week.  They took some blood to test my testosterone and to check lead in my body and do some blood test on my kidney clearance (I don’t understand the test and I don’t understand the result).  The first 2 things were normal, the 3rd thing says I am a little low on the kidney clearance.  Heh, I don’t think any of it will make a difference. —  Then I did the Renal Test that I failed last week.  I would have failed it again had we not figured out that all I needed was to drink a little water between the tests.  Apparently my bladder doesn’t like to respond to demand.  But in the end it all worked out. —  Finally we met with my new Cancer Shrink (by the way, its hard to remember to say psychiatrist when you always refer to them as shrinks).  She was a nice lady asked all the required questions of a good shrink.  And she oked all the mental meds I am currently taking, so I think we will get along just fine.

Had a few issues, but nothing that couldn’t be handled.  So all went well at Mayo.

17 days til I have to report to Mayo for the Day -9 which is 9 days before the transplant.  Am I anxious, a little, but as I told the nice shrink lady, I am ready for this transplant.  I asked for it when I first found out I was sick again.  Hell, I asked for it when I was sick the first time but they don’t do transplants on the type of AML I had.

OK, here’s the skinny on what is wrong with me.  Back is 2015, I was diagnosed with Acute Myeloid Leukemia, AML.  At the same time, unbeknownst to anyone, I had Myelodysplasia Syndrome, MDS. Well, the same chemo I had for the AML (which sent me into remission) also knocked down the MDS.  Flash forward to 2017, my platelets never recovered as a matter of fact, platelets started to fall.  At the end of 2017, I had to get a platelet infusion, just happened to fall right before I made my first trip to Mayo.  My oncologist here had told me, “This is the new normal for me”, Mayo pretty much said the same thing.  BUT, they agreed to check my Bone Marrow Biopsy on the chromosomal level, something that our local Mercy Hospital can not do.  Well, it turns out they found the MDS, and that was causing my platelet problems.  So, in 2018 they decided I needed a Stem Cell Transplant.  I had another platelet infusion during all this.  There is a point where you can have had too many platelet infusions and then your body starts rejecting them.  (that was just a FYI).  The MDS I have, if I don’t have this transplant, will eventually turn into chemo-resistant AML.  Yup, an ugly return of AML that can’t be stopped by normal chemo.  Anyhow, at this point I just have MDS and the transplant is mere weeks away.

I will have to be on a neutropenic diet again.  That means no fresh fruits or vegetables and no undercooked (cook the red/pink out, well done only) meats.  While also meaning I can’t be around fresh flowers.  I lived this diet for 7 months in 2015.  It’s all good, I’m not a huge veggie or fruit eater, and I happen to really like well done meat, and I can deal without fresh flowers.  I have no clue how long I will have neutropenia this time, but Mayo wants us back for a class and I told them we can’t make it.  We shall see if they let us out of it.

On to cheerier news.  Teresa got her birthday present finally.  The new GOD OF WAR game.  So far so good, she seems to be enjoying it.  She was a huge fan of the first 3? GOD OF WAR games, and then was seems to be just as cool, although I think the kid is annoying already and she has been playing for less than a hour.  And for the record, I didn’t miss her birthday, the game was just released last night.

Oh, yeah, we got a new washer/dryer stack.  Teresa is happy about it, other than having to spend money at a time like this.  It’s actually quite an impressive looking unit if nothing else.  Big is the right word to describe it.  We got it installed yesterday morning before we left for Rochester.  So tonight is the first time Teresa had a chance to do a load of laundry, we will see if it does a good job.

Tired, extremely tired tonight.  I got up at 5:15am for a 6:10am appointment.  So, I am gonna find some music and sign off for the night.  And cuz everyone loves a Power Ballad.

Insurance Approved, Tentative Date Set

As I said on Facebook, it has been over 60 hours since I last slept.  Had a weird but not unheard of reaction to Centrum Men’s Multivitamin.  I slept like a baby for the first two nights taking it, since then I have been awake.  Insomnia is definitely not new to me, however insomnia with an actual verifiable cause is.  But seriously, if anyone was going to have such an extreme reaction to 3 Multivitamin over 3 days it would be me.  Dr. Alkhateeb is going to be upset, he is the one who told me to that the Multivitamin.  This was definitely a mistake to do.  I agree that I should be taking some vitamins, but obviously not a super Multivitamin.

Tomorrow I have a blood test/appointment with Dr. Wehbe, the oncologist who saved me life the first round of Leukemia.  I finally get to tell him about the pending transplant.  I mean he knows but doesn’t know the details of what all has and is going to happen before the transplant.  And I think he has the right to know.  I also have to make sure that he understands that no one did anything wrong when the chromosomal stuff was missed, I misunderstood Dr Alkhateeb when we spoke the first time.  Chromosomal stuff is not normally checked on a bone marrow biopsy unless the patient gives a clue that it should be.  I was so typical AML that there was no reason to check.  So, it’s all good.

I just got great news, insurance approved my transplant.  And they have a tentative date for day 0 (transplant day) of May 17th.  Yeah, buddy.  Color me happy.  It puts my 100 days ending on September 1st.   So maybe, just maybe, I won’t miss Fall.

Tomorrow also we head back to the Gift of Life Transplant House and then Mayo early in the morning on Friday.  Who schedules appointments at 6:10am?  UGH.  Anyway, it’s just a 1/2 day visit at Mayo and then we head home.  Just a blood test, the Renal Exam that I failed before, and a meeting with the cancer shrink.  No worries here, it’s all good.

The wind is howling, it’s been raining all day, supposed to turn into snow.  Today is just a yucky day outside.  Tomorrow is supposed to be much nicer.  And next week is finally supposed to look like SPRING 60+ degree days.  Woot.  I will get a week or two of Spring before I have to report to Mayo.

Pucky and Mojo will be heading to the Region on the 28th and 29th or the 5th and 6th.  Next weekend or the weekend after.  Probably the weekend after would be my guess.  I have to be taking meds at the hospital on the 8th (chemo starts on the 10th I believe).  So time is running out to get the dogs to my family in Portage.  Heh, no worries, we’ll get it taken care of.

My mom is making the trip up to Rochester sometime during the week after transplant, when I will be totally a lump.  But hey, she wants to check on her baby.  I would never tell her not to come.  I assume there are flights from O’Hare to Rochester.

So tired, and my thumb still hurts, so I am gonna cut this short.  Got great news today, so happy to share it here.

More CPAP Blues, thank you Dr. Google

I went and saw Dr Donahue today (Chris, the PA, had today and tomorrow off) about my thumb.  She was very sympathetic about it.  Relayed a personal story of one of her fingers which had similar pain.  Explained that normally they prescribe NSAIDs and then send you on your way.  Well, because my platelets are so low, I can’t do NSAIDs at all.  So she tried to prescribe Prednisone (you know, the steroid that solves everything).  Since my transplant is in like 5 weeks, it just didn’t seem right putting Prednisone in my system right now, so I chose not to have it filled.  She said without treatment my thumb will probably hurt for a week to a week and a half if I take it easy on it, which I am trying to do.

OK, I went back on the CPAP per Dr Alkhateeb’s instruction and I am super compliant, getting 100 out of 100 on the app.  That’s right, I am doing CPAP perfectly according to ResMed.  However, during the day I am still fatigued/super tired.  I napped for an hour and 2 snoozes and failed at napping a 2nd time but got 10 minutes, so it’s all good.  I did some research with Dr. Google and he recommended a dental appliance for sleep apnea in conjunction with my CPAP.  Dr. Google seems to think I might not have sleep apnea at all and that I might have Upper Airway Resistance Syndrome, which according to a lot of stuff I read presents almost exactly like sleep apnea.  The “cure” for UARS is the same dental appliance used to treat sleep apnea.  Interesting.  It’s just a mouthguard similar to what football players wear, just designed to jut your lower jaw forward a bit to open said airway and keep from waking you many times during the night. Now, some places online say that this is uncomfortable at first, but you get used to it.  There is also a chance that it might loosen a crown or two in my mouth, that would be a real concern.  However, if I am gonna use the CPAP per doctor’s orders and not nap all the time per doctor’s orders, I have to do something.  And with all the money we shelled out to Mayo, we wouldn’t have to pay a penny for the dental appliance.  The only question I have is how long does it take to get a custom made dental appliance?  For that I will call Adel Dental Group tomorrow and ask.

Hopefully my transplant paperwork got to the insurance today.  It was supposed to.  15 work days from today is when they are supposed to give their approval.  That is when the magic begins.

I have no clue when we are taking the dogs to my mom and brother, it’s just going to magically happen over a couple of days between now and when the transplant procedure begins.

I have no clue when we are gonna get done all we need to get done, especially with my bad thumb slowing everything down.  But we shall persevere, what doesn’t get done just doesn’t get done.

Drew never called me back to confirm lunch tomorrow.  I guess I will call him later.  Would hate to miss lunch with my friend because we failed to communicate.

Dr Alkhateeb put me on Centrum Multivitamin with Minerals.  Which is all good and such, just every time I take a vitamin I get a touch of heartburn.  Now true heartburn is an impossibility for me cuz of my surgery in 2004.  No acid can get anywhere near the area of my chest.  So, it’s weird to have this little pain in my chest a half hour after taking the Vitamin.  I had this pain the last time I tried Multivitamins so I stopped.  Now I kinda have to take them.  So GasX to the rescue… every night.

I took care of everything today that I had to take care of.  Which consisted of making phone calls and relaying information.  Tomorrow I get to do more of the same, and possibly a trip to the doctor again for a referral to a dentist for the aforementioned dental appliance.  But I am gonna call the dentist first and make sure we can get it, and get it fitted correctly, in 3 weeks.

Hoping everything goes smoothly over the next few weeks.  Really can’t afford anything going wrong right now.  Already have my thumb being an issue, would hate to add anything else.

Anyhow, Teresa just got home.  So I am gonna go.

My plans have plans

Hmm, I sprained, strained, or tore something inside my right thumb.  Started hurting on Friday.  I think I am going to go to the doctor (well, Chris, the PA) tomorrow.  I wonder if the Adel Mercy office has an X-Ray machine?  Would be easiest for me if they did, then I wouldn’t have to go somewhere else.  For some reason I am thinking they do not, I am thinking I remember him saying so before.  Oh well, I will go see him, let him squish the far in joint, watch me squirm and yelp and then go about my business, which might include going to Mercy West Lakes and getting an x-ray of my hand.  Not a fun way to spend a Monday, especially not with other issues pending so close.

I am typing this mostly left handed, so I am not tempted to space bar with my right thumb.  It’s actually quite difficult.

Because I can’t type comfortably, my book that I am writing has been put on temporary hold.  I am approximately 8500 words in and feel pretty good about that even though I started writing 2 weeks ago.  I didn’t write anything while at Mayo, had my mind on other things.  I tried to write some (about 200 words) on Friday evening and it hurt my thumb a lot.  So, I have called a book writing hiatus.

If we do nothing for the speeding up of my transplant, it’ll happen in about 5 weeks or so.  15 work days is what insurance wants to approve the transplant.  I hope to be able to call the insurance company and possibly speed things up a bit.  I have the eerie feeling that my platelets are gonna tank 1 more time before the transplant, which would mean another platelet infusion which would cost them money.  So, you can see it’s in their best interest to approve me for the transplant early.  According to my transplant doc, it’s a slam dunk case, I get the transplant or I die.  Simply cut and dry.

Teresa discovered a way to play with her PlayStation on her Mac.  This is a good thing because there really isn’t a whole lot to do up in Rochester if you are the Primary Care Giver and not actively giving care.  Teresa plans to work, thus we are dragging her Mac up (used to be my Mac, long story) to Rochester.  If she happens to play the new God of War game in her spare spare time, it’s nobodies business but hers and I guess technically mine.

I am taking my D&D books with me.  I am gonna work on a large campaign for when I can get back to playing online with my friends.  This will probably end up being the largest campaign that I have plotted out, but when all you have is time, it’s, I won’t say easy, it’s less stressful than when you are budgeting time that you probably should be doing something else with.  And Mordenkainen’s Tome of Foes is supposed to come out May 29th, so I have a new book of monsters to throw at the group.  Yeah, this campaign should turn out EPIC.

We still haven’t taken the dogs to my mom and brother yet.  We are holding out to the last possible minute.  It’s going to be rough to leave them behind, but this is what is the best for them.  The other options we had were too expensive and Pucky and Mojo wouldn’t get the amount of human contact they want/need.   So, when the transplant is scheduled, we will make the pilgrimage to the Region and drop off our furbabies.

I have lunch scheduled on Tuesday with my friend Drew.  Gonna suggest Gusto Pizza or HuHot Mongolian Grill to him and let him make the choice.  I am fine with either of these two places.  Gusto cuz well, it’s the best pizza we have found in the Des Moines area or HuHot cuz I am soon not going to be able to have fresh fruits and vegetables for quite a while.  So either choice is cool with me.

Yeah, for you who may be interested in sending something to me while I am in recovery.  Don’t send a fruit basket and any flowers.  Beyond the reason that both can kill me, they are also not allowed at the Gift of Life transplant house and will be rejected.  I will post the address for cards and stuff like that when we have a permanent housing spot for the 100 days.

Speaking of the 100 days.  Teresa overheard some of the Primary Care Givers talking about the 100 days.  Or the 160, 240, and year that these women had been in the transplant house.   I will go fricking NUTS if I have to stay much longer than the 100 days I was told.  I can understand if I am sick they aren’t letting me go, but if I am healthy, the damn well better let me go when they said they would.

As it stands, I won’t be cleared to travel anywhere for at least a year after my transplant.  So May 2019 is what it looks like.  That is ok, we wont be able to afford to travel before then anyway.

It snow again last night.  Started on APRIL 14 and snowed right into APRIL 15.  Someone needs to wake up mother nature and let her know that he world is supposed to be experiencing Global Warming.  Snow in mid-April is ridiculous.

Tomorrow I need to call Julie, my shrink’s secretary and relay the info that Mayo send to me for my shrink.  They asked for a letter with diagnoses and treatment stuff.  Still don’t know the name of my cancer shrink and I guess they aren’t giving it to me for my shrink either.  Oh well, we have a fax number and a general idea of who to send it to for sharing with Dr. Alkhateeb and the Cancer Shrink.

Heh, when I started typing this entry, I didn’t think it was gonna be over 1000 words.  I guess I had a lot more on my mind than I have had recently.  I guess I’ll cut this off here, I think I have ran out of ramble for now.

I may have played this song before on my blog.  But hey, “Don’t Stop Me Now”