of Gaming, Health, Cold, and more.

Last night’s D&D Game was great.  The group really started to work together.  We managed to figure out the main bad guys and what they are up to and we made some pretty impressive monster kills, including 2 wyvern (not at the same time as we are only level 4).  Danny does a excellent job as DM, his experience DMing really shows.  He kept the game flowing and combat actually went smoothly.  Everyone was on point with their characters.  It was a totally enjoyable 2 1/2 hours.

My game starts on Tuesday, I have posted so much information for my players on the Facebook group.  People (including me) are excited.  I hope I can match the level of excitement with game play.  The first quest is a little weird, so I am hoping it works, cuz if it doesn’t it’s gonna suck.  But hey, this is only my 3rd campaign in 5e and only like my 10th session in 5e total.  I just want my players to have fun.

The headache I mentioned on the 26th as 6 days old, is now 10 days old.  And its getting worse, Tylenol is not working for very long.  I am 1/2 tempted to go to Urgent Care tomorrow.  I checked they are going to be open from 9am to 4pm tomorrow.  It just sucks that med head hurts so much.  I’m sure it’s just stress, but I don’t know how to get rid of this stress.  This headache came on right after getting back from Mayo, so it is the stress knowing that there in nothing that can be done about my other problem which will not be mentioned.  But as it is, I need something stronger than Tylenol.

I miss my mom.  It was wonderful spending a week with her, but now she is back in the Region and I am stuck here in Iowa.  6 1/2 hour drive.  Might as well be 20 hour drive right now.  Winter sucks, I am not gonna try to drive to see her and I can’t really afford a flight either.  So, the next time I get to see her is the end of May beginning of June.  June 3rd is my brother’s 50th Birthday.  Quite the big deal.  I wouldn’t miss this for the world.

Oh, I did order my medical alert bracelet with Low Platelets on it.  The nice ones are so expensive, just didn’t seem right.  I paid just under 50 dollars for mine.  It’s a black silicone band, with a silver bar on it with the information lazered on to it.  It looks cool.  It should be here on the 12th.  I ordered it cuz I felt it was important enough information to share with a 1st responder should I ever need a 1st responder (accident).  I guess it will also inform other medical personnel as well.  Low platelets is a serious issue, I get cut bad somehow, I will bleed out quickly, it’s not pleasant to think about, but it’s my reality now.  Heh, I guess I mentioned my stressor here.

You know what the worse part of Low Platelets is right now.  It’s the fatigue that accompanies it.  I am sleeping 12-16 hours a day right now.  Taking 3 or 4 naps during the day.  It’s truly terrible.

It’s -3 Fahrenheit right now, supposed to get down to -12 tonight.  Darn right cold if you ask me.  It’s supposed to be colder tomorrow, with like a high of -5 down to -20.  Yeah, welcome to winter.  Happy New Year and all that.  Have I mentioned I want to move?  I want to move where the average yearly temperature is 65.  And most of the houses don’t have air conditioners cuz they don’t really need them.  Bet you can’t guess where I am thinking of.

I got the Dungeons and Dragons Tomb of Annihilation Board Game for Christmas.  It looks really cool cuz I got the deluxe edition, so all the miniatures are painted.  I really want to play it, it supposedly only takes an hour to play it.  And it lets you play it solo, or with 2-5 players.  Which is cool.  I just want to play it when my head isn’t hurting so bad.  I want to enjoy it, and this headache is running rampant over everything.  The headache will go away, eventually.  And then I will play the game.

Remember back a few months ago, I told you we got some puzzles to do together.  Well, we spent 1 night doing the borders, then just kinda stopped.  I don’t know if we will ever get back into it.  Kinda stupid of us to spend 50 bucks on puzzles and not do them.   Teresa says it’s my fault, I don’t see how it is.  Oh well, maybe some day we will get back at them.

Thinking I am gonna chill out to Rod Stewart’s Greatest Hits (which is definitely missing some great tracks) and try to play some computer game.  Maybe even Skyrim heh.  I know I have some readers who are feeling the cold with me.  And I know I have some readers who live on the bottom side of the world digging summer right now.  Whatever the weather you got, I hope you are staying comfortable.

I was gonna put the Let it Snow video on here, but even I can’t be that cruel, even with the headache.  So instead you get this

Yeah, I played Madness yesterday.  But this is a much better video/song.  So here ya go.  PEACE.

Too cold, too tired. Going back to bed.

It’s cold and gonna get colder over the weekend.  So glad I do not have to go out in this.  You know it’s bad when the high is predicted to be -3.  And the wind will be a blowing, with windchills expected to be around -30 at times.  I feel sorry for those who have to go out in it. I’ll just stay inside where it’s nice and warm.

My headache is still going strong, went and saw one of my cancer doc’s nurse yesterday, told her I have had a headache for 6 days and she just blew it off.  I am hoping it goes away soon.

My game is still on for next Tuesday.  I am ready and I think my players are ready.  So, we are gonna have some fun.

I was wrong, the Friday night game is going to happen tonight.  Heh, good thing I didn’t go make plans.  The DM announced over chat the we ARE playing tonight at 7:30est.  Which prompted our island friend to go… “What is eastern time”.  lol

Still waiting for Teresa to be ready to watch the end of The Last Airbender.  All the sudden, she isn’t wanting to watch it.  She is doing everything else, but not watching the last couple disks.   Weird.

Teresa and I decided that we need a real vacation.  Assuming I am gonna get healthy enough, or accept that I am where I am enough AND assuming Teresa can get the days off.  Teresa and I will be going on a cruise.  Not just any cruise, but the Royal Caribbean Cruise Line’s “We Will Rock You” cruise.

The first time I suggested cruise to Teresa, she shot it down hard.  In her defense, she was sick when I asked her.  So when we started talking vacation she said she wanted someplace she could just sit and veg and admire the view.  Cruises were not even on my radar.  So I found places in Cancun and Punta Cana.  Then she discovered that they have such a thing as Musical Theatre themed cruises.  And boom, there I was looking for those specific cruises.  I found them, they go to the Bahamas.  So we will be going to the Bahamas when we go.

This cruise is actually going to be much cheaper than the one my mom and I were going to take to Alaska and I really am not sure why.

But yay, we will finally have to get passports.  I know I could have gotten one whenever but now I have to and that is what is important here.

OK, I am gonna cut this blog post short.  Fatigue is happening and my bed is just a few steps away.  NAP TIME.  But first, A Video…

Headache > everything else

Have had a permanent headache for the last 5 or 6 days.  Thus making me quite miserable.  But I am muddling thru life without thinking about much of anything.  The headache is making my “not worry” about it philosophy easy to follow.  Thank the gods there is Tylenol (and I can take it).  Not supposed to take ibuprofen anymore, or any other pain reliever, so Tylenol for the win.

My mom, being the sweet soul that she is, went to the dollar store the day before she left to get my Tylenol.  She was gone quite a while, especially considering the dollar store is only a block away.  But anyway, when she got back she had Tylenol Cold & Flu,  Tylenol Sinus Severe, Tyenol PM, and Acetaminophen PM.  You may have noticed the lack of just Tylenol on that list.  Because of my Hashimoto’s Disease (bad thyroid) I am not supposed to take any otc antihistamines, which rules out cold & flu and severe sinus.  And I didn’t want to sleep more, so the PM stuff was out of the question too.  But my head was hurting, so I popped a couple of the Cold & Flu daytime pills.  It worked, but my doctor would have been yelling at me.

Teresa brought me home a HUGE bottle of Acetaminophen the day mom left.

Well, like I said I have had this headache for a while.  Teresa said here take one of these caffeine pills, it’ll get rid of your headache and it did.  It also kept me awake for 24+ hours.  Teresa, finding out I was awake for so long suggested I take a Tylenol PM.  OK, I read the package, it’s all good.  An hour later, I laid down to try to fall asleep.  She says I slept for a couple hours, but the dreams I had were tripping.  I just remember being thankful for waking up.  I will NEVER take Tylenol PM again, no matter how desperately I need sleep.

So, if the headache is still around in a couple days, I will call my PA, Chris.  I got a bunch of bloodwork type tests that I am months late for.  Heh, he’d be happy to see me.  Yeah, I have had bad long term headaches before, there has never been a cause, they have always just went away.  I seriously doubt there is a cause now.

Since my main present I got months ago (my new latop), Christmas was kinda light in the gift department for me.  Oh don’t get me wrong, I got a couple things, but not a bunch like normal.  Teresa made out good though, a Nintendo Switch, A new Office Chair, she will be getting 2 poster sized wall hangings (one of Pucky, one of Mojo), as soon as she decides which photos she wants to use.  She also got PJs and some Amazon gift cards.

The sweet & sour pork turned out phenomenal.  Teresa is such a great cook. We used green and red peppers to give it the Christmasy look.  lol.

If I was a betting man, I would bet that Friday night D&D will be cancelled again this week.  Just thinking the Friday before New Years, yeah, if I had a life, I wouldn’t be around either.  It’s Tuesday now, I bet we will get notice on Thursday there will be now game Friday.  Yup, that is my prediction.

Barring anything horrible happening, my game starts in 1 week.  Yup next Tuesday, my new D&D game over mumble begins.  As of right now, I still don’t know if one of my players is going to be able to play (new job).  But even if he can’t, it’s all good, 5 players instead of 6, it’s doable.

Been watching “the Last Airbender” on DVD with Teresa and I am actually really enjoying it.  I seem to remember a movie about it that sucked.  But the cartoon is actually pretty good.

Oh yeah, my chili turned out wonderful.  I hadn’t made it in a long time and it ended up not quite tasting right, so obviously I forgot to add something…  Teresa swooped in and saved the day.  Now I have leftovers for a while, and it just tastes better day after day.  The secret is using steak instead of hamburger.  Gives it a different texture and a slightly different flavor profile.

Well, Christmas came and went.  It ended up hitting -1 degree last night.  I think it’s 4 today.  I want to move so bad.  I know exactly where I want to go.  It just is never gonna happen.  I am stuck in FREEZING cold, the SWELTERING hot Iowa.  I complain about Iowa heat during the summer too.

I hope, for those of you who celebrate a winter holiday, that yours was great.

No worries

I made a decision, I am gonna “not worry” anymore about my platelet issue.  If my platelets go down much more, the symptoms become noticeable.  Specifically, I will have petechial bruising (please google if you are interested in knowing what that is).  If/when I have said bruising I will rush to my cancer doc and then probably to the hospital for an infusion of platelets.  Until then, I am not going to think much about it anymore or at least try to not think about it anymore.

I am getting set up with monthly blood draws at my cancer doc’s office.  That way we can follow along as my platelets do whatever they are going to do.  Hopefully we will catch whatever problems I might have before they become severe.

Meanwhile, Mayo Clinic has requested the last bone marrow biopsy from Mercy Hospital in order to determine if I truly have Myleodypsia or not.  If not, I have no clue what is wrong with me.  Anyhow, I gave them permission to request the biopsy from Mercy, and they are going to have their pathologists look at it.  I am thinking now that it is unnecessary but too late to stop it.  Not that I really care if they look at it.

We went and saw Drew at Beirman Furniture.  He had the “perfect” chair for Teresa.  He sat here in one chair, it was ok, he asked a few questions then moved her to another chair and that was the chair she picked.  Drew definitely knows what he is talking about.  And I have to say, the price was more than reasonable, Thanks, Drew.

So, peoples of the Des Moines area, if you are in the market for office furniture, please give him a call.  He will take good care of you.

D&D was cancelled again tonight.  Yeah, Christmas weekend.  I am not surprised that it got cancelled, just a little disappointed.   I was really looking forward to it.  Here’s to hoping we play next week before I forget what was happening in the game.

My game is a GO for January 2nd.  Adam is supposed to let me know if he is going to be able to play as soon as possible, he think his boss will give him Tuesday nights off.  I hope this is so.  I really want him to play.

I have the first adventure planned out.  It’s either going to work or it’s going to be really an awkward start.  Heh, it’s not like I can test it out before hand, so January 2nd will be either real fun or real weird.  Hope, if its weird, it doesn’t scare anyone off.

Mom left this morning, she forgot to call me and let me know she made it home safely.  I guess I will call her after I get done writing this blog entry.  Anyhow, I miss her already.  I really wish they had never moved from Des Moines, but I totally understand why her and my brother moved back to the Region.

I forgot to call my pain doctor about getting in to get a MRI of my back before the end of the year.  All the other crap medical stuff was going on and I totally slipped my mind.  Now there is only 1 week left of the year, and I am guessing zero chance of getting it done since Monday is Christmas.  Oh well, I guess we have all next year to get it done.  At least we have Teresa’s Flex Plan.

Tomorrow I am cooking Chili.  Not just any chili, the Campbell family not so secret chili with steak instead of hamburger.  Changes the whole flavor and texture profile.  Got crackers and cheddar cheese to go with it.  Making a double batch so I can have leftovers for a long time.

Teresa said tomorrow she is making her sugar cookies.  I LOVE her sugar cookies.  It is a shame I have to wait for Christmas for her to make her sugar cookies, but hey I’ll enjoy them whenever she makes them.

And for Christmas dinner we are making (or rather probably she is making) sweet and sour pork.  Yeah, a little (lot) non traditional.  We aren’t really celebrators of Christmas.  We don’t see anyone on Christmas.  We don’t really do anything special.  I think I posted how I killed Christmas for Teresa.  I feel bad about that still.

Oh, I did try to order Teresa her last Christmas presents which would have arrived after Christmas.  She wanted poster size pictures of Mojo and Pucky.  She picked out the pictures on Amazon’s photo thingy and for some reason my computer wouldn’t do the magic, so she had to order them on her ipad.  Weird, but it worked there.  She has really good pics of both of them.  So they are gonna look cool on our bedroom walls.

And to be honest, I will be glad when the holidays are over and things get back to normal.  I would like to have gone to the store, but the mass amount of strangers is a bit too much for me.  Teresa braved 2 grocery stores tonight, she said they were packed.  No thanks, with my anxiety still bugging me already, and my compromised immune system (something I have complained much about here) it just made sense for me not to go to the store.  So, I am waiting patiently for sanity to return to the area.

and so…..

It’s almost Christmas and I am still shopping for gifts. DOH

You know what happens when you put a person with a weakened immune system in a room of 100+ people for a half hour?  He gets sick 2 days later.  I’ve felt badish all day, but tonight at dinner I got feeling perfectly horrible.  The sad part is, I can’t even identify what is not feeling right, I just feel rotten all over.  I hope I feel better tomorrow or at least by Friday as Friday I have plans to get out of the house.

It’s been wonderful hanging out with mom.  I am gonna miss her badly when she heads back to her home on Friday.  But she has a life to get back to.  I am just thankful to her for coming to take me up to Mayo and listening to me complain about them.

I got one more gift I am buying Teresa.  She needs a new computer chair.  I called my friend Drew up and said she didn’t care what it looks like as long as it is comfortable.  Drew, who works for Bierman Furniture in Urbandale, IA, says he knows the almost perfect chair for her.  So Friday, Teresa is taking off work at 3, and we are meeting at Drew’s office to shop for a chair.  The chair she is using was cutting edge super comfy 25 years ago, not so much now.  It’s time she got a new chair and I hope to get it for her on Friday.

I forgot the gifts that Teresa asked for back in July.  Yeah, I guess I am a bad husband, forgetting gifts while only dealing with serious health issues.   Not like I was dying or anything of the sort.  So, I am gonna order them tonight when I finish this blog post and she will get them after Christmas.  Oh, what are they, they are 2 poster sized photos of Pucky and Mojo.  She reminded me of them tonight in a club over the head kind of way.  So she will get them, just not in time for Christmas.  Oh well.

Oh crap, I gotta feel better by Friday.   Friday night D&D is happening this week and next week.  This week is to make up for last week when our DM’s internet was out.  Then next week is to resume our schedule.  I have to feel good by game time.  Got plans.  I have already spelled out the plans here, so I am not gonna go over them again.

13 days until my game goes live.  Yup, very much looking forward to running this campaign, even more than the previous campaigns I ran.  I have learned so much about 5e since those early campaigns, now I am a better DM.   At least I think I will be.  I have 6 players, 2 I know really well, 1 is my DM for the Friday night game, 1 played 1 or 2 sessions in the high level campaign, 1 is his roommate, and 1 I know absolutely nothing about except that she is a she (I think).  Anyhow, as I get to know these people better, things will gel in my head and we will have lots and lots of fun.

Michelle from the Leukemia and Lymphoma Society was flabbergasted at what Mayo Clinic said to me.  She is going to contact a MDS (what I have) specialist she knows and see if he will do something proactively or if I am stuck with this retroactive crap.  I just want to get better, not get worse to get better.  I don’t think I am asking too much.  The only problem with Michelle’s doctor friend is the fact that he is in Maryland or Massachusetts (one of the M states on the east coast).  But hell, if he will do something for me, I will fly out to see him.

In the mean time, I wrote an email to my cancer doc asking to go back on the monthly blood tests and seeing him every few months.  At least then I feel like at least we will see if things start to go bad.  But I will be damned if I ever go back to Mayo Clinic.

And here is my video of the night


We made it to Rochester on Sunday afternoon.   The trip up was totally uneventful.  It’s 4 hours of much of nothing thru BFE Iowa and BFE Minnesota.  Nothing to see here, move along.  A drive I hope to never have to do again.

Got up to at 8 to go to Mayo Clinic by 9, cuz the paper they sent me said be there by 9:30 and I am always early for everything if at all possible.  Get up to the counter and she goes, “Oh, your appointment isn’t til 10, we says 1/2 hour early for people to fill out paperwork.”  I had my paperwork filled out ahead of time.  So we sat for an hour while we waited for me to be called back.

I get called back by the nurse, she does the nursely things they do… blood pressure, temperature, height and weight.  Turns out I weight exactly what I have weighed for the last 6-8 months.  I was running a fever though, that sparked some interest from her.  She asked a bunch of questions and punched a bunch of stuff into the computer.  Then she said the doctor would be in shortly.

A half hour later, the doctor comes in (Not saying his name, cuz 1 it will mean nothing to you and 2 I don’t want any chance of a slander issue and 3 I have more class than that).  He tells me a little about MDS and then proceeds to tell me they won’t do anything for me until I get significantly worse.  Translation for those that need it, they won’t do anything for me unless I am dying.  He used phrases like Massive Bruising, Excessive Bleeding or Consecutive Infections… any of which is potentially deadly to me.  I was stunned.  The great Mayo Clinic would do NOTHING for me.  BAH.

The he left and came back 10 minutes later with the doc in charge in tow.  Who said exactly the same thing.  I said, I was hoping for a more proactive approach to fixing my platelet issue, not a reactive one to getting deathly ill.  He just smiled and said that is what they do.

Needless to say, I was not happy.  But they ordered a blood test so I had to wait at the exit desk for a few minutes, the first doctor runs up with a release form in his hand to have my bone marrow biopsy sample sent to Mayo so their pathologists can have a look.  By this time I just wanted out of there, so I signed.

Then I headed to where they do the blood draws.  It’s a huge room with 100s of people waiting to have their blood drawn.  You wait for your name to be called to a specific door and then you go.  We waited there about 30 minutes before my name was called.  She took blood from my one good vein and proceeded to start wrapping my arm in gauss.  I asked “Do you have any cohban ( the springy stuff they wrap around blood draws for people with bleeding disorders )?”, she replies they don’t use that stuff here.  DOH.  Well, at least she wrapped the gauss tight enough to stop the bleeding and no swelling.  But by the time I took the wrap off, I was already pissed and disappointed in the whole visit.

Needless to say, I will NOT be going back to Mayo Clinic, at least not for Hematology issues.  My cancer doc, Dr. Wehbe is as good if not better than the morons at Mayo.

We stayed Monday night cuz I was emotionally wiped and mom was kinda tired too.  Fell asleep in my jeans on top of the covers and took a 2 hour nap.  So by the time I woke, there was no leaving on Monday.  We got up at 9 today, was out the door before 10 and home before 2.  More driving thru BFE Minnesota and BFE Iowa.  But we made it.  May I NEVER have to make that trip again.

I would like to thank mother nature for keeping the weather beautiful for December in Minnesota, and the drive up and back.

Almost ready to go

Today we head to Minnesota.  My appointment is at 9:30am tomorrow morning.  Yesterday I felt darn right miserable due to anxiety, this morning I am up at 6:40 because of weird dreams fueled by anxiety.  Yeah, anxiety sucks.  But anyhow, mom made it here safely yesterday, and today, sometime between 11 and noon we are gonna start making our way to Rochester.  Gonna be a long day with anxiety, fatigue, and a definite inability to sleep in the car.  I hope the hotel is nice.

After my talk with Michelle, the LLS associate director, I am a bit freaked out about my white blood count too.  It is only 3.something and normal is 8 to 13.  I guess I will talk to the hematology people about that too.  Dr. Wehbe seemed unconcerned about this, but I really think it’s something to be concerned about.  I think I recall that my wbc never got up to 4 after chemo.  The only thing (that they check) going rightish is my hemoglobin, which while not normal is at 12.3 (should be 14).

Since I lifted the ban on Christmas music within my earshot (which apparently I made years ago) Teresa has went a little nuts.  Alexa and Alexa (echo and dot) both blare Christmas music from when she wakes up to when she goes to bed… unless she is watching television, or I am headed to bed.  I told her to go ahead and play Christmas music and she has ran with the notion.  I guess I should have known what I was getting into when I said she could.

Weirdest thing, our cable modem and our router died at the same time.  And it was definitely both of them.  The cable modem wouldn’t stay online.  OK, we got new one and magically it could stay online.  But we still kept losing connection.  All the lights were lit appropriately on the router.  But it was either that or the cable from the cable modem to the router (highly unlikely).  SO, luckily for us, I had a spare router in all my junk from when I ran the travel agency.  And even more luckily I found it yesterday.  Teresa processed to do that magic to make it work and lo and behold, we have working internet again.  Most frustrating last 2 days, but it’s all good now.

I finally found a 6th and final person for my D&D game.  I found her on reddit lfg.  She had posted she wanted to get into a campaign and that is what I am starting.  She seems to know what she is doing, which is good cuz 2 of the players don’t really.  My game is gonna be interesting, the group is balanced.  The game is set to start January 2nd.  Everyone is busily making their characters or already has them made.  And we are multi-national.  heh.

D&D is a great diversion.  I can get lost for hours planning and plotting and totally forget about anxiety and my health issues during that time.  5e is simpler than D&D used to be.  Simpler in this case isn’t bad.  It’s just what it is.  Even character generation for the most part is easier (I have a pdf that lets me created characters in like 20 minutes whereas it used to take hours).  And now that I am more comfortable with the rules, this should be an even better game than me previous 2 runs.  And that is a goal, to always get a bit better.

I’m thinking of quitting WoW again.  It just doesn’t do anything for me anymore.  There is no excitement, no wow factor.  As a matter of fact, for the last couple weeks, I have only been logging in for about 5 minutes a day.  So not worth $14.99 a month.  Didn’t like ESO very much either.  Maybe I am not meant to play an MMORPG at this point of my life.  They are just blah, boring to me now.

Naturally, I am taking my laptop with me to Minnesota.  I will be posting a Blog post every evening after Mayo is done.  They’ll probably be short posts, cuz there isn’t a lot to this, take blood, analyze it, hopefully give medicine or something.  But maybe the docs there will tell me something I can share with you guys.  Any way it comes down, it will be documented in this blog.