Looking back at 2017, looking forward to 2018. (kinda long)

Looking back at 2017, the early months showed little promise.  Heck I didn’t even post on Facebook until February 11th to whine about the flu.  The first few months of 2017 was dealing with finally giving up working and getting into the medically disabled mindset again.  It wasn’t a particularly good time of my life. 

I had quit WoW again at the end of 2016.  I thought it was just WoW, but it turned out to be MMORPGs in general.  I spent entirely too much money on Elder Scrolls Online, and was turned off completely as much as I was turned off to WoW.  Sad thing when for years all I did was play World of Warcraft.  Went back to Wow in Octoberish and just quit again.  No more WoW for me.

I got the CPAP machine in February too.  I hated that thing so much when I first got it.  Now I haven’t used it in months and Teresa is mad at me about that. Anyhow, I finally got a SoClean and plan on cleaning it really good and using it again.  I really did get better sleep when using it.  But man, those first couple months were really bad, my poor nose.

I did try to apply for 1 job in 2017.  The only problem was it was at Mediacom.  And my wife works for Mediacom.  And they have a policy about not hiring spouses to work in the same location.  Sucks, but it was Mediacom’s loss, cuz I would have been damn good at cable modem technical support.

Then there was the VirtualBox mess.  Teresa, I love her dearly, had one crappy student.  I tried to learn, I tried very hard, just didn’t understand and my notes didn’t make sense.  Spent a couple weeks trying to learn then realized I wouldn’t be able to get a job doing it cuz I still have no degree or experience.

In March, I started the BLOG you are reading now.  That was when I was gonna try school.  First came WGU, found out I don’t know Math anymore, and my English composition sucked.  In my defense, when it came to write the composition, I had a great thesis and just FROZE on the supporting of it.  Needless to say, I did not get into WGU.

Second was DMACC.  Was gonna be a doctor.  Yes, that was actually the plan.  3 years at DMACC to do the first 2 years of pre-med and then 2+ years at Iowa State with a degree in Biology or something like that.  Great plan, until reality hit me in the face and said that I would have to take way too much beginning math and beginning science just to get to the courses I needed to take.  Heh, my dream of being a doctor was out.

So, thirdly was marketing, web development, and photography at DMACC.  Yeah, I was gonna bite off a big bite and hope I didn’t choke on it.   Everything was set, I was excited, people were excited for me, I was to start in the summer online.  Yup, it was definitely a go, until I read the syllabi and had a total panic attack.  That was the end of school for me.  FOREVER.

The new deck, and subsequently having my mother-in-law buy our house were great things that happened.  See it wasn’t all bad.

Jim, my brother, had a birthday party on June 3rd that was great.  So glad I could attend.  Looking forward to his 50th birthday this year.

The mumble D&D games were good while they lasted.  Just too much trying to run two games in a week.  Couldn’t cancel just one cuz how would I pick.  So I cancelled both mid adventure.  To my friends who were playing in those games, I am truly sorry I did the great flake out and bailed on them.  

Made plans to take my mom on a cruise to Alaska, then my platelets dropped, I freaked out and cancelled it.  BOOM.  Yeah, had made ½ the payments for it.  Was ready to go get my passport.  Was ready to go see the Great Glacier Bay.  But I honestly thought my leukemia was coming back and that trumps everything.

The money I got back from cancelling the cruise got me my Birthday/Christmas present, my new laptop.  I totally love this laptop.  It does everything I want it to and more.  The only problem I have with it, which is the same for all laptops it seems, is that the speakers suck.  But hey, I needed a new laptop, so things did work out.

I started shaving my head in 2017.  Well having Supercuts shave my head.  The first time I went it triggered a little ptsd and I freaked a little after I had it done.  After 2 or 3 times at Supercuts, Teresa and I decided to buy a barber razer and she started shaving my head.  Teresa actually does a better job than Supercuts.  Oh well, not the razer has paid for itself and I get my head shaved whenever I want it to.  Oh, I don’t go bald, I go to a #2.  My head isn’t that pretty.  

We did move everything out of storage and into the bedroom.  I have a nice little office set up here.  Everything I could want within my reach.  It is actually cool that we were able to reuse all my office furniture from my failed travel agency business in my office in the bedroom.  And it is still cool that our bedroom is big enough to hold all this furniture and we still have room.

Dodged the leukemia bullet a couple times in 2017, wish the way to test wasn’t bone marrow biopsies, had too many of those this year.

Fall came, my mood went into the crapper.  Seasonal Affective Disorder SUCKS worse than Bipolar.  At least you can treat Bipolar.  SAD kicks my butt every late September early October and last until December or sometimes as late as late January.   This year I got lucky and it ended at the beginning of December.  WOOT.

I didn’t walk Light the Night this year.  I was SICK, very sick and since people in various stages of leukemia and lymphoma treatment and recovery are there, I decided to stay home.  Yeah, I hope to do it next year.

I made it to Thanksgivingfest in 2017.  I will make it 2018 too. It was really nice this year.

Mayo Clinic was a wasted trip.  I felt like they didn’t care.  I was just a number to them.  And a paycheck (which they still haven’t billed me for.)

Christmas was as Christmas is always at our hours.  Very blah.  Teresa got some good gifts, but I got my main gift month ago. 

Now it’s NEW YEARS and I look at what 2018 has in store.

 


Looking forward to 2018.  More fear about cutting myself or getting into an accident.  Having a low platelet count is scary.   The count is down to 22/24 and it’s supposed to be 150 to 450.  So, it’s a little low. Nothing can be done about it.  Everything that could possibly help was tried, and now it’s just wait and watch.  Blah.

Teresa and I have decided that despite my platelet issue, we are gonna go on a cruise to the Bahamas.  We don’t know when exactly.  But we do know it’s Royal Caribbean Cruise Lines and it’s the “We Will Rock You” themed cruise.  Teresa is saving up her time off.  And I am gonna think healthy thoughts and we are gonna pull this off.  EVENTUALLY.

Right now, I am planning on going to the Region at the end of May/beginning of June for my brother’s 50th Birthday.  Also around the 21st of September for my high school 30th class reunion.  And finally, Thanksgivingfest time in November.  These trips to the Region are always bright spots.

Teresa turns 45 on her Birthday on April 1st.  I turn 48 on my Birthday on August 6th.

I look forward to playing in the Friday night D&D game ran by Danny.  It’s a fun diversion.

I am also starting a D&D game on Tuesday nights.  It’s good be fun.  And I only plan to run 1 game now.  Less stress.

Beyond that, I am a disabled 47-year-old who plays video games to pass his days away.  Dealing with a lot of fatigue from the platelet issue, so I sleep a lot also. But there is only so much games you can play and so long you can sleep.

So, boredom is the outlook for 2018.  Maybe 2018 won’t suck as bad as I think it’s going to.  But by this short summary, it doesn’t hold a whole lot of promise. 

 

HERE’S TO HOPING YOUR 2018 IS BETTER THAN MINE.

 


of Gaming, Health, Cold, and more.

Last night’s D&D Game was great.  The group really started to work together.  We managed to figure out the main bad guys and what they are up to and we made some pretty impressive monster kills, including 2 wyvern (not at the same time as we are only level 4).  Danny does a excellent job as DM, his experience DMing really shows.  He kept the game flowing and combat actually went smoothly.  Everyone was on point with their characters.  It was a totally enjoyable 2 1/2 hours.


My game starts on Tuesday, I have posted so much information for my players on the Facebook group.  People (including me) are excited.  I hope I can match the level of excitement with game play.  The first quest is a little weird, so I am hoping it works, cuz if it doesn’t it’s gonna suck.  But hey, this is only my 3rd campaign in 5e and only like my 10th session in 5e total.  I just want my players to have fun.


The headache I mentioned on the 26th as 6 days old, is now 10 days old.  And its getting worse, Tylenol is not working for very long.  I am 1/2 tempted to go to Urgent Care tomorrow.  I checked they are going to be open from 9am to 4pm tomorrow.  It just sucks that med head hurts so much.  I’m sure it’s just stress, but I don’t know how to get rid of this stress.  This headache came on right after getting back from Mayo, so it is the stress knowing that there in nothing that can be done about my other problem which will not be mentioned.  But as it is, I need something stronger than Tylenol.


I miss my mom.  It was wonderful spending a week with her, but now she is back in the Region and I am stuck here in Iowa.  6 1/2 hour drive.  Might as well be 20 hour drive right now.  Winter sucks, I am not gonna try to drive to see her and I can’t really afford a flight either.  So, the next time I get to see her is the end of May beginning of June.  June 3rd is my brother’s 50th Birthday.  Quite the big deal.  I wouldn’t miss this for the world.


Oh, I did order my medical alert bracelet with Low Platelets on it.  The nice ones are so expensive, just didn’t seem right.  I paid just under 50 dollars for mine.  It’s a black silicone band, with a silver bar on it with the information lazered on to it.  It looks cool.  It should be here on the 12th.  I ordered it cuz I felt it was important enough information to share with a 1st responder should I ever need a 1st responder (accident).  I guess it will also inform other medical personnel as well.  Low platelets is a serious issue, I get cut bad somehow, I will bleed out quickly, it’s not pleasant to think about, but it’s my reality now.  Heh, I guess I mentioned my stressor here.

You know what the worse part of Low Platelets is right now.  It’s the fatigue that accompanies it.  I am sleeping 12-16 hours a day right now.  Taking 3 or 4 naps during the day.  It’s truly terrible.


It’s -3 Fahrenheit right now, supposed to get down to -12 tonight.  Darn right cold if you ask me.  It’s supposed to be colder tomorrow, with like a high of -5 down to -20.  Yeah, welcome to winter.  Happy New Year and all that.  Have I mentioned I want to move?  I want to move where the average yearly temperature is 65.  And most of the houses don’t have air conditioners cuz they don’t really need them.  Bet you can’t guess where I am thinking of.


I got the Dungeons and Dragons Tomb of Annihilation Board Game for Christmas.  It looks really cool cuz I got the deluxe edition, so all the miniatures are painted.  I really want to play it, it supposedly only takes an hour to play it.  And it lets you play it solo, or with 2-5 players.  Which is cool.  I just want to play it when my head isn’t hurting so bad.  I want to enjoy it, and this headache is running rampant over everything.  The headache will go away, eventually.  And then I will play the game.


Remember back a few months ago, I told you we got some puzzles to do together.  Well, we spent 1 night doing the borders, then just kinda stopped.  I don’t know if we will ever get back into it.  Kinda stupid of us to spend 50 bucks on puzzles and not do them.   Teresa says it’s my fault, I don’t see how it is.  Oh well, maybe some day we will get back at them.


Thinking I am gonna chill out to Rod Stewart’s Greatest Hits (which is definitely missing some great tracks) and try to play some computer game.  Maybe even Skyrim heh.  I know I have some readers who are feeling the cold with me.  And I know I have some readers who live on the bottom side of the world digging summer right now.  Whatever the weather you got, I hope you are staying comfortable.

I was gonna put the Let it Snow video on here, but even I can’t be that cruel, even with the headache.  So instead you get this


Yeah, I played Madness yesterday.  But this is a much better video/song.  So here ya go.  PEACE.

Too cold, too tired. Going back to bed.

It’s cold and gonna get colder over the weekend.  So glad I do not have to go out in this.  You know it’s bad when the high is predicted to be -3.  And the wind will be a blowing, with windchills expected to be around -30 at times.  I feel sorry for those who have to go out in it. I’ll just stay inside where it’s nice and warm.


My headache is still going strong, went and saw one of my cancer doc’s nurse yesterday, told her I have had a headache for 6 days and she just blew it off.  I am hoping it goes away soon.


My game is still on for next Tuesday.  I am ready and I think my players are ready.  So, we are gonna have some fun.


I was wrong, the Friday night game is going to happen tonight.  Heh, good thing I didn’t go make plans.  The DM announced over chat the we ARE playing tonight at 7:30est.  Which prompted our island friend to go… “What is eastern time”.  lol


Still waiting for Teresa to be ready to watch the end of The Last Airbender.  All the sudden, she isn’t wanting to watch it.  She is doing everything else, but not watching the last couple disks.   Weird.


Teresa and I decided that we need a real vacation.  Assuming I am gonna get healthy enough, or accept that I am where I am enough AND assuming Teresa can get the days off.  Teresa and I will be going on a cruise.  Not just any cruise, but the Royal Caribbean Cruise Line’s “We Will Rock You” cruise.

The first time I suggested cruise to Teresa, she shot it down hard.  In her defense, she was sick when I asked her.  So when we started talking vacation she said she wanted someplace she could just sit and veg and admire the view.  Cruises were not even on my radar.  So I found places in Cancun and Punta Cana.  Then she discovered that they have such a thing as Musical Theatre themed cruises.  And boom, there I was looking for those specific cruises.  I found them, they go to the Bahamas.  So we will be going to the Bahamas when we go.

This cruise is actually going to be much cheaper than the one my mom and I were going to take to Alaska and I really am not sure why.

But yay, we will finally have to get passports.  I know I could have gotten one whenever but now I have to and that is what is important here.


OK, I am gonna cut this blog post short.  Fatigue is happening and my bed is just a few steps away.  NAP TIME.  But first, A Video…


Headache > everything else

Have had a permanent headache for the last 5 or 6 days.  Thus making me quite miserable.  But I am muddling thru life without thinking about much of anything.  The headache is making my “not worry” about it philosophy easy to follow.  Thank the gods there is Tylenol (and I can take it).  Not supposed to take ibuprofen anymore, or any other pain reliever, so Tylenol for the win.

My mom, being the sweet soul that she is, went to the dollar store the day before she left to get my Tylenol.  She was gone quite a while, especially considering the dollar store is only a block away.  But anyway, when she got back she had Tylenol Cold & Flu,  Tylenol Sinus Severe, Tyenol PM, and Acetaminophen PM.  You may have noticed the lack of just Tylenol on that list.  Because of my Hashimoto’s Disease (bad thyroid) I am not supposed to take any otc antihistamines, which rules out cold & flu and severe sinus.  And I didn’t want to sleep more, so the PM stuff was out of the question too.  But my head was hurting, so I popped a couple of the Cold & Flu daytime pills.  It worked, but my doctor would have been yelling at me.

Teresa brought me home a HUGE bottle of Acetaminophen the day mom left.

Well, like I said I have had this headache for a while.  Teresa said here take one of these caffeine pills, it’ll get rid of your headache and it did.  It also kept me awake for 24+ hours.  Teresa, finding out I was awake for so long suggested I take a Tylenol PM.  OK, I read the package, it’s all good.  An hour later, I laid down to try to fall asleep.  She says I slept for a couple hours, but the dreams I had were tripping.  I just remember being thankful for waking up.  I will NEVER take Tylenol PM again, no matter how desperately I need sleep.

So, if the headache is still around in a couple days, I will call my PA, Chris.  I got a bunch of bloodwork type tests that I am months late for.  Heh, he’d be happy to see me.  Yeah, I have had bad long term headaches before, there has never been a cause, they have always just went away.  I seriously doubt there is a cause now.


Since my main present I got months ago (my new latop), Christmas was kinda light in the gift department for me.  Oh don’t get me wrong, I got a couple things, but not a bunch like normal.  Teresa made out good though, a Nintendo Switch, A new Office Chair, she will be getting 2 poster sized wall hangings (one of Pucky, one of Mojo), as soon as she decides which photos she wants to use.  She also got PJs and some Amazon gift cards.

The sweet & sour pork turned out phenomenal.  Teresa is such a great cook. We used green and red peppers to give it the Christmasy look.  lol.


If I was a betting man, I would bet that Friday night D&D will be cancelled again this week.  Just thinking the Friday before New Years, yeah, if I had a life, I wouldn’t be around either.  It’s Tuesday now, I bet we will get notice on Thursday there will be now game Friday.  Yup, that is my prediction.


Barring anything horrible happening, my game starts in 1 week.  Yup next Tuesday, my new D&D game over mumble begins.  As of right now, I still don’t know if one of my players is going to be able to play (new job).  But even if he can’t, it’s all good, 5 players instead of 6, it’s doable.


Been watching “the Last Airbender” on DVD with Teresa and I am actually really enjoying it.  I seem to remember a movie about it that sucked.  But the cartoon is actually pretty good.


Oh yeah, my chili turned out wonderful.  I hadn’t made it in a long time and it ended up not quite tasting right, so obviously I forgot to add something…  Teresa swooped in and saved the day.  Now I have leftovers for a while, and it just tastes better day after day.  The secret is using steak instead of hamburger.  Gives it a different texture and a slightly different flavor profile.


Well, Christmas came and went.  It ended up hitting -1 degree last night.  I think it’s 4 today.  I want to move so bad.  I know exactly where I want to go.  It just is never gonna happen.  I am stuck in FREEZING cold, the SWELTERING hot Iowa.  I complain about Iowa heat during the summer too.


I hope, for those of you who celebrate a winter holiday, that yours was great.


No worries

I made a decision, I am gonna “not worry” anymore about my platelet issue.  If my platelets go down much more, the symptoms become noticeable.  Specifically, I will have petechial bruising (please google if you are interested in knowing what that is).  If/when I have said bruising I will rush to my cancer doc and then probably to the hospital for an infusion of platelets.  Until then, I am not going to think much about it anymore or at least try to not think about it anymore.

I am getting set up with monthly blood draws at my cancer doc’s office.  That way we can follow along as my platelets do whatever they are going to do.  Hopefully we will catch whatever problems I might have before they become severe.


Meanwhile, Mayo Clinic has requested the last bone marrow biopsy from Mercy Hospital in order to determine if I truly have Myleodypsia or not.  If not, I have no clue what is wrong with me.  Anyhow, I gave them permission to request the biopsy from Mercy, and they are going to have their pathologists look at it.  I am thinking now that it is unnecessary but too late to stop it.  Not that I really care if they look at it.


We went and saw Drew at Beirman Furniture.  He had the “perfect” chair for Teresa.  He sat here in one chair, it was ok, he asked a few questions then moved her to another chair and that was the chair she picked.  Drew definitely knows what he is talking about.  And I have to say, the price was more than reasonable, Thanks, Drew.

So, peoples of the Des Moines area, if you are in the market for office furniture, please give him a call.  He will take good care of you.


D&D was cancelled again tonight.  Yeah, Christmas weekend.  I am not surprised that it got cancelled, just a little disappointed.   I was really looking forward to it.  Here’s to hoping we play next week before I forget what was happening in the game.


My game is a GO for January 2nd.  Adam is supposed to let me know if he is going to be able to play as soon as possible, he think his boss will give him Tuesday nights off.  I hope this is so.  I really want him to play.

I have the first adventure planned out.  It’s either going to work or it’s going to be really an awkward start.  Heh, it’s not like I can test it out before hand, so January 2nd will be either real fun or real weird.  Hope, if its weird, it doesn’t scare anyone off.


Mom left this morning, she forgot to call me and let me know she made it home safely.  I guess I will call her after I get done writing this blog entry.  Anyhow, I miss her already.  I really wish they had never moved from Des Moines, but I totally understand why her and my brother moved back to the Region.


I forgot to call my pain doctor about getting in to get a MRI of my back before the end of the year.  All the other crap medical stuff was going on and I totally slipped my mind.  Now there is only 1 week left of the year, and I am guessing zero chance of getting it done since Monday is Christmas.  Oh well, I guess we have all next year to get it done.  At least we have Teresa’s Flex Plan.


Tomorrow I am cooking Chili.  Not just any chili, the Campbell family not so secret chili with steak instead of hamburger.  Changes the whole flavor and texture profile.  Got crackers and cheddar cheese to go with it.  Making a double batch so I can have leftovers for a long time.


Teresa said tomorrow she is making her sugar cookies.  I LOVE her sugar cookies.  It is a shame I have to wait for Christmas for her to make her sugar cookies, but hey I’ll enjoy them whenever she makes them.


And for Christmas dinner we are making (or rather probably she is making) sweet and sour pork.  Yeah, a little (lot) non traditional.  We aren’t really celebrators of Christmas.  We don’t see anyone on Christmas.  We don’t really do anything special.  I think I posted how I killed Christmas for Teresa.  I feel bad about that still.


Oh, I did try to order Teresa her last Christmas presents which would have arrived after Christmas.  She wanted poster size pictures of Mojo and Pucky.  She picked out the pictures on Amazon’s photo thingy and for some reason my computer wouldn’t do the magic, so she had to order them on her ipad.  Weird, but it worked there.  She has really good pics of both of them.  So they are gonna look cool on our bedroom walls.


And to be honest, I will be glad when the holidays are over and things get back to normal.  I would like to have gone to the store, but the mass amount of strangers is a bit too much for me.  Teresa braved 2 grocery stores tonight, she said they were packed.  No thanks, with my anxiety still bugging me already, and my compromised immune system (something I have complained much about here) it just made sense for me not to go to the store.  So, I am waiting patiently for sanity to return to the area.


and so…..


It’s almost Christmas and I am still shopping for gifts. DOH

You know what happens when you put a person with a weakened immune system in a room of 100+ people for a half hour?  He gets sick 2 days later.  I’ve felt badish all day, but tonight at dinner I got feeling perfectly horrible.  The sad part is, I can’t even identify what is not feeling right, I just feel rotten all over.  I hope I feel better tomorrow or at least by Friday as Friday I have plans to get out of the house.


It’s been wonderful hanging out with mom.  I am gonna miss her badly when she heads back to her home on Friday.  But she has a life to get back to.  I am just thankful to her for coming to take me up to Mayo and listening to me complain about them.


I got one more gift I am buying Teresa.  She needs a new computer chair.  I called my friend Drew up and said she didn’t care what it looks like as long as it is comfortable.  Drew, who works for Bierman Furniture in Urbandale, IA, says he knows the almost perfect chair for her.  So Friday, Teresa is taking off work at 3, and we are meeting at Drew’s office to shop for a chair.  The chair she is using was cutting edge super comfy 25 years ago, not so much now.  It’s time she got a new chair and I hope to get it for her on Friday.


I forgot the gifts that Teresa asked for back in July.  Yeah, I guess I am a bad husband, forgetting gifts while only dealing with serious health issues.   Not like I was dying or anything of the sort.  So, I am gonna order them tonight when I finish this blog post and she will get them after Christmas.  Oh, what are they, they are 2 poster sized photos of Pucky and Mojo.  She reminded me of them tonight in a club over the head kind of way.  So she will get them, just not in time for Christmas.  Oh well.


Oh crap, I gotta feel better by Friday.   Friday night D&D is happening this week and next week.  This week is to make up for last week when our DM’s internet was out.  Then next week is to resume our schedule.  I have to feel good by game time.  Got plans.  I have already spelled out the plans here, so I am not gonna go over them again.


13 days until my game goes live.  Yup, very much looking forward to running this campaign, even more than the previous campaigns I ran.  I have learned so much about 5e since those early campaigns, now I am a better DM.   At least I think I will be.  I have 6 players, 2 I know really well, 1 is my DM for the Friday night game, 1 played 1 or 2 sessions in the high level campaign, 1 is his roommate, and 1 I know absolutely nothing about except that she is a she (I think).  Anyhow, as I get to know these people better, things will gel in my head and we will have lots and lots of fun.


Michelle from the Leukemia and Lymphoma Society was flabbergasted at what Mayo Clinic said to me.  She is going to contact a MDS (what I have) specialist she knows and see if he will do something proactively or if I am stuck with this retroactive crap.  I just want to get better, not get worse to get better.  I don’t think I am asking too much.  The only problem with Michelle’s doctor friend is the fact that he is in Maryland or Massachusetts (one of the M states on the east coast).  But hell, if he will do something for me, I will fly out to see him.


In the mean time, I wrote an email to my cancer doc asking to go back on the monthly blood tests and seeing him every few months.  At least then I feel like at least we will see if things start to go bad.  But I will be damned if I ever go back to Mayo Clinic.


And here is my video of the night


TOO MUCH HYPE, NOT ENOUGH REALITY

We made it to Rochester on Sunday afternoon.   The trip up was totally uneventful.  It’s 4 hours of much of nothing thru BFE Iowa and BFE Minnesota.  Nothing to see here, move along.  A drive I hope to never have to do again.


Got up to at 8 to go to Mayo Clinic by 9, cuz the paper they sent me said be there by 9:30 and I am always early for everything if at all possible.  Get up to the counter and she goes, “Oh, your appointment isn’t til 10, we says 1/2 hour early for people to fill out paperwork.”  I had my paperwork filled out ahead of time.  So we sat for an hour while we waited for me to be called back.


I get called back by the nurse, she does the nursely things they do… blood pressure, temperature, height and weight.  Turns out I weight exactly what I have weighed for the last 6-8 months.  I was running a fever though, that sparked some interest from her.  She asked a bunch of questions and punched a bunch of stuff into the computer.  Then she said the doctor would be in shortly.


A half hour later, the doctor comes in (Not saying his name, cuz 1 it will mean nothing to you and 2 I don’t want any chance of a slander issue and 3 I have more class than that).  He tells me a little about MDS and then proceeds to tell me they won’t do anything for me until I get significantly worse.  Translation for those that need it, they won’t do anything for me unless I am dying.  He used phrases like Massive Bruising, Excessive Bleeding or Consecutive Infections… any of which is potentially deadly to me.  I was stunned.  The great Mayo Clinic would do NOTHING for me.  BAH.


The he left and came back 10 minutes later with the doc in charge in tow.  Who said exactly the same thing.  I said, I was hoping for a more proactive approach to fixing my platelet issue, not a reactive one to getting deathly ill.  He just smiled and said that is what they do.


Needless to say, I was not happy.  But they ordered a blood test so I had to wait at the exit desk for a few minutes, the first doctor runs up with a release form in his hand to have my bone marrow biopsy sample sent to Mayo so their pathologists can have a look.  By this time I just wanted out of there, so I signed.


Then I headed to where they do the blood draws.  It’s a huge room with 100s of people waiting to have their blood drawn.  You wait for your name to be called to a specific door and then you go.  We waited there about 30 minutes before my name was called.  She took blood from my one good vein and proceeded to start wrapping my arm in gauss.  I asked “Do you have any cohban ( the springy stuff they wrap around blood draws for people with bleeding disorders )?”, she replies they don’t use that stuff here.  DOH.  Well, at least she wrapped the gauss tight enough to stop the bleeding and no swelling.  But by the time I took the wrap off, I was already pissed and disappointed in the whole visit.


Needless to say, I will NOT be going back to Mayo Clinic, at least not for Hematology issues.  My cancer doc, Dr. Wehbe is as good if not better than the morons at Mayo.


We stayed Monday night cuz I was emotionally wiped and mom was kinda tired too.  Fell asleep in my jeans on top of the covers and took a 2 hour nap.  So by the time I woke, there was no leaving on Monday.  We got up at 9 today, was out the door before 10 and home before 2.  More driving thru BFE Minnesota and BFE Iowa.  But we made it.  May I NEVER have to make that trip again.


I would like to thank mother nature for keeping the weather beautiful for December in Minnesota, and the drive up and back.